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The Physical and Psychological Impact of Multiple Sclerosis Using the MSIS-29 via the Web Portal of the UK MS Register

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  • Kerina H Jones
  • David V Ford
  • Philip A Jones
  • Ann John
  • Rodden M Middleton
  • Hazel Lockhart-Jones
  • Jeffrey Peng
  • Lisa A Osborne
  • J Gareth Noble

Abstract

Introduction: The MSIS-29 was developed to assess the physical and psychological impact of MS. The aims of this study were to use the responses to the MSIS-29 via the web portal of the UK MS Register to: examine the internal properties of the scale delivered via the internet, profile the cohort, and assess how well the scale measures impact of disability on the potential workforce. Methods: Between May 2011 and April 2012, 4558 people with MS completed the MSIS-29(v.1). The responses were collated with basic demographic and descriptive MS data and the resulting dataset was analysed in SPSS(v.20). Results: Internal consistency was high (Cronbach's alpha 0.97 MSIS-29-PHYS, 0.92 MSIS-29-PSYCH). The mean MSIS-29-PHYS score was 60.5 (50.6%) with a median of 62 and the mean MSIS-29-PSYCH score was 24.8 (43.8%) with a median of 24. Physical scores increased with age and disease duration (p

Suggested Citation

  • Kerina H Jones & David V Ford & Philip A Jones & Ann John & Rodden M Middleton & Hazel Lockhart-Jones & Jeffrey Peng & Lisa A Osborne & J Gareth Noble, 2013. "The Physical and Psychological Impact of Multiple Sclerosis Using the MSIS-29 via the Web Portal of the UK MS Register," PLOS ONE, Public Library of Science, vol. 8(1), pages 1-9, January.
    • Handle: RePEc:plo:pone00:0055422
    DOI: 10.1371/journal.pone.0055422
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    1. Lisa A. Osborne & J. Gareth Noble & Hazel M. Lockhart-Jones & Rodden Middleton & Simon Thompson & Inocencio D.C. Maramba & Kerina H. Jones & David V. Ford, 2012. "Sources of Discovery, Reasons for Registration, and Expectations of an Internet-Based Register for Multiple Sclerosis: Visualisations and Explorations of Word Uses and Contexts," International Journal of Healthcare Information Systems and Informatics (IJHISI), IGI Global, vol. 7(3), pages 27-43, July.
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    Cited by:

    1. Peter Flachenecker & Anna Karoline Bures & Angeli Gawlik & Ann-Christin Weiland & Sarah Kuld & Klaus Gusowski & René Streber & Klaus Pfeifer & Alexander Tallner, 2020. "Efficacy of an Internet-Based Program to Promote Physical Activity and Exercise after Inpatient Rehabilitation in Persons with Multiple Sclerosis: A Randomized, Single-Blind, Controlled Study," IJERPH, MDPI, vol. 17(12), pages 1-13, June.
    2. Kerina H Jones & David V Ford & Philip A Jones & Ann John & Rodden M Middleton & Hazel Lockhart-Jones & Jeffrey Peng & Lisa A Osborne & J Gareth Noble, 2013. "How People with Multiple Sclerosis Rate Their Quality of Life: An EQ-5D Survey via the UK MS Register," PLOS ONE, Public Library of Science, vol. 8(6), pages 1-8, June.

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    1. Kerina H Jones & David V Ford & Philip A Jones & Ann John & Rodden M Middleton & Hazel Lockhart-Jones & Jeffrey Peng & Lisa A Osborne & J Gareth Noble, 2013. "How People with Multiple Sclerosis Rate Their Quality of Life: An EQ-5D Survey via the UK MS Register," PLOS ONE, Public Library of Science, vol. 8(6), pages 1-8, June.

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