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Disability Measurement for Lymphatic Filariasis: A Review of Generic Tools Used within Morbidity Management Programs

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  • Lynne Zeldenryk
  • Susan Gordon
  • Marion Gray
  • Richard Speare
  • Wayne Melrose

Abstract

Lymphatic filariasis (LF)-related disability affects 40 million people globally, making LF the leading cause of physical disability in the world. Despite this, there is limited research into how the impacts of LF-related disability are best measured. This article identifies the tools currently being used to measure LF-related disability and reviews their applicability against the known impacts of LF. The findings from the review show that the generic disability tools currently used by LF programs fail to measure the majority of known impacts of LF-related disability. The findings from the review support the development of an LF-specific disability measurement tool and raise doubt about the suitability of generic disability tools to assess disability related to neglected tropical diseases (NTDs) globally.

Suggested Citation

  • Lynne Zeldenryk & Susan Gordon & Marion Gray & Richard Speare & Wayne Melrose, 2012. "Disability Measurement for Lymphatic Filariasis: A Review of Generic Tools Used within Morbidity Management Programs," PLOS Neglected Tropical Diseases, Public Library of Science, vol. 6(9), pages 1-7, September.
    • Handle: RePEc:plo:pntd00:0001768
    DOI: 10.1371/journal.pntd.0001768
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    References listed on IDEAS

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    1. Person, Bobbie & Bartholomew, L. Kay & Gyapong, Margaret & Addiss, David G. & van den Borne, Bart, 2009. "Health-related stigma among women with lymphatic filariasis from the Dominican Republic and Ghana," Social Science & Medicine, Elsevier, vol. 68(1), pages 30-38, January.
    2. Myrtle Perera & Margaret Whitehead & David Molyneux & Mirani Weerasooriya & Godfrey Gunatilleke, 2007. "Neglected Patients with a Neglected Disease? A Qualitative Study of Lymphatic Filariasis," PLOS Neglected Tropical Diseases, Public Library of Science, vol. 1(2), pages 1-8, November.
    3. Bandyopadhyay, Lalita, 1996. "Lymphatic filariasis and the women of India," Social Science & Medicine, Elsevier, vol. 42(10), pages 1401-1410, May.
    4. Lynne Michelle Zeldenryk & Marion Gray & Richard Speare & Susan Gordon & Wayne Melrose, 2011. "The Emerging Story of Disability Associated with Lymphatic Filariasis: A Critical Review," PLOS Neglected Tropical Diseases, Public Library of Science, vol. 5(12), pages 1-8, December.
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