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“Living Well” Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the IDEAL Cohort
[Relationship of subjective and objective social status with psychological and physiological functioning: Preliminary data in healthy white women]

Author

Listed:
  • Linda Clare
  • Laura D Gamble
  • Anthony Martyr
  • Serena Sabatini
  • Sharon M Nelis
  • Catherine Quinn
  • Claire Pentecost
  • Christina Victor
  • Roy W Jones
  • Ian R Jones
  • Martin Knapp
  • Rachael Litherland
  • Robin G Morris
  • Jennifer M Rusted
  • Jeanette M Thom
  • Rachel Collins
  • Catherine Henderson
  • Fiona E Matthews

Abstract

ObjectivesUnderstanding whether and how caregivers’ capability to “live well” changes over time, and the factors associated with change, could help target effective caregiver support.MethodsWe analyzed 3 time points (12 months apart) of Improving the experience of Dementia and Enhancing Active Life (IDEAL) cohort data from coresident spouse caregivers of community-dwelling individuals who had mild-to-moderate dementia at baseline, using latent growth and growth mixture models. Capability to “live well” was derived from measures of quality of life, well-being, and satisfaction with life.ResultsData from 995 spouse caregivers at Time 1, 780 at Time 2, and 601 at Time 3 were included. The mean “living well” score decreased slightly over time. We identified 3 classes of caregivers: one with higher baseline scores declining slightly over time (Stable; 66.8%), one with low baseline scores remaining stable (Lower Stable; 26.0%), and one with higher baseline scores showing marked decline (Declining; 7.2%). Scores on baseline measures differentiated the Lower Stable, but not the Declining, from the Stable class. Longitudinally, the Declining class was associated with care recipient cognitive decline and increasing hours providing care, as well as caregiver stress and depression. Findings were similar when caregivers with other kin relationships were included.DiscussionThe findings indicate the importance of prompt identification of, and support for, caregivers at risk of the declining capability to “live well” and may assist in identifying those caregivers who could benefit most from targeted support.

Suggested Citation

  • Linda Clare & Laura D Gamble & Anthony Martyr & Serena Sabatini & Sharon M Nelis & Catherine Quinn & Claire Pentecost & Christina Victor & Roy W Jones & Ian R Jones & Martin Knapp & Rachael Litherland, 2022. "“Living Well” Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the IDEAL Cohort [Relationship of subjective and objective social status with psychological and physio," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 77(10), pages 1852-1863.
  • Handle: RePEc:oup:geronb:v:77:y:2022:i:10:p:1852-1863.
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    References listed on IDEAS

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    1. Zigante, Valentina & Fernandez, Jose-Luis & Mazzotta, Fernanda, 2021. "Changes in the balance between formal and informal care supply in England between 2001 and 2011: evidence from census data," Health Economics, Policy and Law, Cambridge University Press, vol. 16(2), pages 232-249, April.
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    Cited by:

    1. Hillman, A. & Jones, I.R & Quinn, C. & Pentecost, C. & Stapley, S. & Charlwood, C. & Clare, L., 2023. "The precariousness of living with, and caring for people with, dementia: Insights from the IDEAL programme," Social Science & Medicine, Elsevier, vol. 331(C).

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