IDEAS home Printed from https://ideas.repec.org/a/nat/natcom/v13y2022i1d10.1038_s41467-022-32707-0.html
   My bibliography  Save this article

Investigating disparity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people

Author

Listed:
  • Joanne Luke

    (The University of Melbourne)

  • Philippa Dalach

    (The University of Melbourne)

  • Lindsay Tuer

    (Murdoch Children’s Research Institute
    Machado Joseph Disease Foundation)

  • Ravi Savarirayan

    (Murdoch Children’s Research Institute)

  • Angeline Ferdinand

    (The University of Melbourne)

  • Julie McGaughran

    (Royal Brisbane and Women’s Hospital
    University of Queensland)

  • Emma Kowal

    (Deakin University)

  • Libby Massey

    (Machado Joseph Disease Foundation
    James Cook University)

  • Gail Garvey

    (Charles Darwin University)

  • Hugh Dawkins

    (The University of Notre Dame Australia)

  • Misty Jenkins

    (Walter Eliza Hall Institute)

  • Yin Paradies

    (Deakin University)

  • Glenn Pearson

    (University of Western Australia)

  • Chloe A. Stutterd

    (Murdoch Children’s Research Institute
    University of Melbourne)

  • Gareth Baynam

    (University of Western Australia
    Genetic Services of Western Australia, Western Australian Department of Health
    Western Australian Register of Developmental Anomalies, Western Australian Department of Health)

  • Margaret Kelaher

    (The University of Melbourne)

Abstract

Globally, there is a recognised need that all populations should be able to access the benefits of genomics and precision medicine. However, achieving this remains constrained by a paucity of data that quantifies access to clinical genomics, particularly amongst Indigenous populations. Using administrative data from clinical genetic health services across three Australian jurisdictions (states/territories), we investigate disparities in the scheduling and attendance of appointments among Aboriginal and/or Torres Strait Islander people, compared to non-Indigenous people. For 14,870 appointments scheduled between 2014–2018, adjusted Multivariate Poisson Regression models revealed that Aboriginal and/or Torres Strait Islander people were scheduled fewer appointments (IRR 0.73 [0.68–0.80],

Suggested Citation

  • Joanne Luke & Philippa Dalach & Lindsay Tuer & Ravi Savarirayan & Angeline Ferdinand & Julie McGaughran & Emma Kowal & Libby Massey & Gail Garvey & Hugh Dawkins & Misty Jenkins & Yin Paradies & Glenn , 2022. "Investigating disparity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people," Nature Communications, Nature, vol. 13(1), pages 1-11, December.
    • Handle: RePEc:nat:natcom:v:13:y:2022:i:1:d:10.1038_s41467-022-32707-0
    DOI: 10.1038/s41467-022-32707-0
    as

    Download full text from publisher

    File URL: https://www.nature.com/articles/s41467-022-32707-0
    File Function: Abstract
    Download Restriction: no
    File URL: https://libkey.io/10.1038/s41467-022-32707-0?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Government of India, 2017. "National Health Policy 2017," Working Papers id:11664, eSocialSciences.
    2. Yin Paradies, 2016. "Colonisation, racism and indigenous health," Journal of Population Research, Springer, vol. 33(1), pages 83-96, March.
    3. Yin Paradies, 2016. "Erratum to: Colonisation, racism and indigenous health," Journal of Population Research, Springer, vol. 33(2), pages 197-197, June.
    4. Wild, Kayli & Maypilama, Elaine Lawurrpa & Kildea, Sue & Boyle, Jacqueline & Barclay, Lesley & Rumbold, Alice, 2013. "‘Give us the full story’: Overcoming the challenges to achieving informed choice about fetal anomaly screening in Australian Aboriginal communities," Social Science & Medicine, Elsevier, vol. 98(C), pages 351-360.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Kathomi Gatwiri & Darlene Rotumah & Elizabeth Rix, 2021. "BlackLivesMatter in Healthcare: Racism and Implications for Health Inequity among Aboriginal and Torres Strait Islander Peoples in Australia," IJERPH, MDPI, vol. 18(9), pages 1-11, April.
    2. Rebecca Singer & Karen Zwi & Robert Menzies, 2019. "Predictors of In-Hospital Mortality in Aboriginal Children Admitted to a Tertiary Paediatric Hospital," IJERPH, MDPI, vol. 16(11), pages 1-12, May.
    3. Tamara Mackean & Madison Shakespeare & Matthew Fisher, 2022. "Indigenous and Non-Indigenous Theories of Wellbeing and Their Suitability for Wellbeing Policy," IJERPH, MDPI, vol. 19(18), pages 1-16, September.
    4. Brianna F. Poirier & Joanne Hedges & Lisa G. Smithers & Megan Moskos & Lisa M. Jamieson, 2022. "Child-, Family-, and Community-Level Facilitators for Promoting Oral Health Practices among Indigenous Children," IJERPH, MDPI, vol. 19(3), pages 1-19, January.
    5. Howard, K. & Garvey, G. & Anderson, K. & Dickson, M. & Viney, R. & Ratcliffe, J. & Howell, M. & Gall, A. & Cunningham, J. & Whop, L.J. & Cass, A. & Jaure, A. & Mulhern, B., 2024. "Development of the What Matters 2 Adults (WM2A) wellbeing measure for Aboriginal and Torres Strait Islander adults," Social Science & Medicine, Elsevier, vol. 347(C).
    6. Yashadhana, Aryati & Fields, Ted & Burnett, Anthea & Zwi, Anthony B., 2021. "Re-examining the gap: A critical realist analysis of eye health inequity among Aboriginal and Torres Strait Islander Australians," Social Science & Medicine, Elsevier, vol. 284(C).
    7. Greaves, Lara M. & Lindsay Latimer, Cinnamon & Li, Eileen & Hamley, Logan, 2023. "Well-being and cultural identity for Māori: Knowledge of iwi (tribal) affiliations does not strongly relate to health and social service outcomes," Social Science & Medicine, Elsevier, vol. 329(C).
    8. Thom, Rowan Ropata Macgregor & Grimes, Arthur, 2022. "Land loss and the intergenerational transmission of wellbeing: The experience of iwi in Aotearoa New Zealand," Social Science & Medicine, Elsevier, vol. 296(C).
    9. Astghik Mavisakalyan & Yashar Tarverdi, 2023. "Identity and support for policies towards Indigenous people: evidence from Australia," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 167(1), pages 535-570, June.
    10. Burns, Ailish & DeAtley, Teresa & Short, Susan E., 2023. "The maternal health of American Indian and Alaska Native people: A scoping review," Social Science & Medicine, Elsevier, vol. 317(C).
    11. Péta Phelan & Robyn Oxley, 2021. "Understanding the Social and Emotional Wellbeing of Aboriginal LGBTIQ(SB)+ Youth in Victoria’s Youth Detention," Social Inclusion, Cogitatio Press, vol. 9(2), pages 18-29.
    12. Cerdeña, Jessica P. & Rivera, Luisa M. & Spak, Judy M., 2021. "Intergenerational trauma in Latinxs: A scoping review," Social Science & Medicine, Elsevier, vol. 270(C).
    13. Patricia Cullen & Tamara Mackean & Faye Worner & Cleone Wellington & Hayley Longbottom & Julieann Coombes & Keziah Bennett-Brook & Kathleen Clapham & Rebecca Ivers & Maree Hackett & Marlene Longbottom, 2020. "Trauma and Violence Informed Care Through Decolonising Interagency Partnerships: A Complexity Case Study of Waminda’s Model of Systemic Decolonisation," IJERPH, MDPI, vol. 17(20), pages 1-21, October.
    14. Rhys Jones & Alexandra Macmillan & Papaarangi Reid, 2020. "Climate Change Mitigation Policies and Co-Impacts on Indigenous Health: A Scoping Review," IJERPH, MDPI, vol. 17(23), pages 1-18, December.
    15. Tamara Butler & Alana Gall & Gail Garvey & Khwanruethai Ngampromwongse & Debra Hector & Scott Turnbull & Kerri Lucas & Caroline Nehill & Anna Boltong & Dorothy Keefe & Kate Anderson, 2022. "A Comprehensive Review of Optimal Approaches to Co-Design in Health with First Nations Australians," IJERPH, MDPI, vol. 19(23), pages 1-38, December.
    16. van Doren, Taylor P. & Zajdman, Deborah & Brown, Ryan A. & Gandhi, Priya & Heintz, Ron & Busch, Lisa & Simmons, Callie & Paddock, Raymond, 2023. "Risk perception, adaptation, and resilience during the COVID-19 pandemic in Southeast Alaska Natives," Social Science & Medicine, Elsevier, vol. 317(C).
    17. Tiff-Annie Kenny & Matthew Little & Tad Lemieux & P. Joshua Griffin & Sonia D. Wesche & Yoshitaka Ota & Malek Batal & Hing Man Chan & Melanie Lemire, 2020. "The Retail Food Sector and Indigenous Peoples in High-Income Countries: A Systematic Scoping Review," IJERPH, MDPI, vol. 17(23), pages 1-49, November.
    18. Paul Saunders & Aunty Kerrie Doyle, 2022. "Cultural Proficiency in First Nations Health Research: A Mixed-Methods, Cross-Cultural Evaluation of a Novel Resource," IJERPH, MDPI, vol. 20(1), pages 1-17, December.
    19. Kate Anderson & Alana Gall & Tamara Butler & Khwanruethai Ngampromwongse & Debra Hector & Scott Turnbull & Kerri Lucas & Caroline Nehill & Anna Boltong & Dorothy Keefe & Gail Garvey, 2022. "Development of Key Principles and Best Practices for Co-Design in Health with First Nations Australians," IJERPH, MDPI, vol. 20(1), pages 1-19, December.
    20. Gail Garvey & Kate Anderson & Alana Gall & Tamara L. Butler & Joan Cunningham & Lisa J. Whop & Michelle Dickson & Julie Ratcliffe & Alan Cass & Allison Tong & Brian Arley & Kirsten Howard, 2021. "What Matters 2 Adults (WM2Adults): Understanding the Foundations of Aboriginal and Torres Strait Islander Wellbeing," IJERPH, MDPI, vol. 18(12), pages 1-21, June.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:nat:natcom:v:13:y:2022:i:1:d:10.1038_s41467-022-32707-0. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Sonal Shukla or Springer Nature Abstracting and Indexing (email available below). General contact details of provider: http://www.nature.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.