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Investigating disparity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people

Author

Listed:
  • Joanne Luke

    (The University of Melbourne)

  • Philippa Dalach

    (The University of Melbourne)

  • Lindsay Tuer

    (Murdoch Children’s Research Institute
    Machado Joseph Disease Foundation)

  • Ravi Savarirayan

    (Murdoch Children’s Research Institute)

  • Angeline Ferdinand

    (The University of Melbourne)

  • Julie McGaughran

    (Royal Brisbane and Women’s Hospital
    University of Queensland)

  • Emma Kowal

    (Deakin University)

  • Libby Massey

    (Machado Joseph Disease Foundation
    James Cook University)

  • Gail Garvey

    (Charles Darwin University)

  • Hugh Dawkins

    (The University of Notre Dame Australia)

  • Misty Jenkins

    (Walter Eliza Hall Institute)

  • Yin Paradies

    (Deakin University)

  • Glenn Pearson

    (University of Western Australia)

  • Chloe A. Stutterd

    (Murdoch Children’s Research Institute
    University of Melbourne)

  • Gareth Baynam

    (University of Western Australia
    Genetic Services of Western Australia, Western Australian Department of Health
    Western Australian Register of Developmental Anomalies, Western Australian Department of Health)

  • Margaret Kelaher

    (The University of Melbourne)

Abstract

Globally, there is a recognised need that all populations should be able to access the benefits of genomics and precision medicine. However, achieving this remains constrained by a paucity of data that quantifies access to clinical genomics, particularly amongst Indigenous populations. Using administrative data from clinical genetic health services across three Australian jurisdictions (states/territories), we investigate disparities in the scheduling and attendance of appointments among Aboriginal and/or Torres Strait Islander people, compared to non-Indigenous people. For 14,870 appointments scheduled between 2014–2018, adjusted Multivariate Poisson Regression models revealed that Aboriginal and/or Torres Strait Islander people were scheduled fewer appointments (IRR 0.73 [0.68–0.80],

Suggested Citation

  • Joanne Luke & Philippa Dalach & Lindsay Tuer & Ravi Savarirayan & Angeline Ferdinand & Julie McGaughran & Emma Kowal & Libby Massey & Gail Garvey & Hugh Dawkins & Misty Jenkins & Yin Paradies & Glenn , 2022. "Investigating disparity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people," Nature Communications, Nature, vol. 13(1), pages 1-11, December.
    • Handle: RePEc:nat:natcom:v:13:y:2022:i:1:d:10.1038_s41467-022-32707-0
    DOI: 10.1038/s41467-022-32707-0
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    References listed on IDEAS

    as
    1. Government of India, 2017. "National Health Policy 2017," Working Papers id:11664, eSocialSciences.
    2. Yin Paradies, 2016. "Colonisation, racism and indigenous health," Journal of Population Research, Springer, vol. 33(1), pages 83-96, March.
    3. Yin Paradies, 2016. "Erratum to: Colonisation, racism and indigenous health," Journal of Population Research, Springer, vol. 33(2), pages 197-197, June.
    4. Wild, Kayli & Maypilama, Elaine Lawurrpa & Kildea, Sue & Boyle, Jacqueline & Barclay, Lesley & Rumbold, Alice, 2013. "‘Give us the full story’: Overcoming the challenges to achieving informed choice about fetal anomaly screening in Australian Aboriginal communities," Social Science & Medicine, Elsevier, vol. 98(C), pages 351-360.
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