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Publics and biobanks in China and Europe: a comparative perspective

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  • Johannes Starkbaum
  • Haidan Chen
  • Herbert Gottweis

Abstract

We compare public perceptions of biobanks in China and in Europe, reporting similarities and differences in how publics in Europe and China view key issues in the realm of biobank research. Despite many differences in perception, the similarity in the perception of biobanks in China and in Europe is striking. Our research finds that Chinese with lower education levels are less concerned about privacy, while those with higher education levels have preferences in privacy protection that are similar to those in Europe. Transnational research is perceived positively in both regions, but specific historical experiences shape how people approach these issues. While Chinese publics focus on certain effects of international research on the Chinese state, Europeans are mainly concerned about data security and impacts on research. The study is based on 66 focus groups conducted in China (6) and Europe (60), with approximately 700 participants. Copyright Springer-Verlag Berlin Heidelberg 2014

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  • Johannes Starkbaum & Haidan Chen & Herbert Gottweis, 2014. "Publics and biobanks in China and Europe: a comparative perspective," Asia Europe Journal, Springer, vol. 12(3), pages 345-359, September.
    • Handle: RePEc:kap:asiaeu:v:12:y:2014:i:3:p:345-359
    DOI: 10.1007/s10308-014-0396-4
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    Cited by:

    1. Chen, Haidan, 2021. "Privacy in breast cancer biobank: Chinese patients’ perceptions," Social Science & Medicine, Elsevier, vol. 282(C).

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