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Epidemiological features and socioeconomic burden of childhood Wilson Disease

Author

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  • Alexandra MORARU

    (Doctoral researcher at Carol Davila University of Medicine and Pharmacy Bucharest, Romania)

Abstract

Wilson Disease is a rare autosomal recessive disorder of copper metabolism with a disabling chronic evolution. This condition requires lifelong treatment of the patient. Positive diagnosis is hard to establish due to the fact that a single test alone does not provide certainty. After the diagnosis is established the chelating treatment must be started. Delaying the treatment can be fatal to the patient. The socioeconomic factor is very important during the diagnostic stage and monitoring of the patient. In special literature, this subject is not addressed. This factor must not be ignored, especially in Romania. The purpose of this paper is to highlight the costs generated by the diagnosis and treatment of Wilson Disease in South-Eastern Romania taking into consideration the main research results of a study elaborated in the Grigore Alexandrescu Emergency Hospital for Children, in Bucharest, between January 2004 and December 2014.

Suggested Citation

  • Alexandra MORARU, 2015. "Epidemiological features and socioeconomic burden of childhood Wilson Disease," Romanian Journal of Economics, Institute of National Economy, vol. 40(1(49)), pages 198-209, june.
    • Handle: RePEc:ine:journl:v:40:y:2015:i:49:p:198-209
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    More about this item

    Keywords

    children Wilson Disease; rare disease; socioeconomic; medicoeconomic;
    All these keywords.

    JEL classification:

    • I10 - Health, Education, and Welfare - - Health - - - General
    • I15 - Health, Education, and Welfare - - Health - - - Health and Economic Development

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