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Identifying and Addressing the Barriers to the Use of an Internet-Register for Multiple Sclerosis

Author

Listed:
  • Lisa A. Osborne

    (College of Medicine, Swansea University, Swansea, UK)

  • Hazel M. Lockhart-Jones

    (College of Medicine, Swansea University, Swansea, UK)

  • Rodden M. Middleton

    (College of Medicine, Swansea University, Swansea, UK)

  • Simon Thompson

    (College of Medicine, Swansea University, Swansea, UK)

  • Inocencio D. C. Maramba

    (College of Medicine, Swansea University, Swansea, UK)

  • Kerina H. Jones

    (College of Medicine, Swansea University, Swansea, UK)

  • David V. Ford

    (College of Medicine, Swansea University, Swansea, UK)

  • J. Gareth Noble

    (College of Medicine, Swansea University, Swansea, UK)

Abstract

Given the potential of health internet-registers, this study examined how such registers can be made more effective and efficient. This involved investigating the actual barriers to usage experienced by those for whom such registers are established to help. To elicit responses regarding the opinions, views, and experiences of participants, concerning their various reasons for non-progression or non-completion of the pilot UK MS Register, a list of ten potential key areas of difficulty, in the form of short statements, was e-mailed to participants. A content analysis revealed that there were four main areas of concern that could represent potential barriers for health internet-registers, in general, and that need to be considered when establishing, designing, and developing such registers: technical aspects of using the internet; computer literacy and ability, encompassing website design, clarity, and user-friendliness; symptom mismatches with register content; and condition-specific effects and impacts as barriers to internet-register use.

Suggested Citation

  • Lisa A. Osborne & Hazel M. Lockhart-Jones & Rodden M. Middleton & Simon Thompson & Inocencio D. C. Maramba & Kerina H. Jones & David V. Ford & J. Gareth Noble, 2013. "Identifying and Addressing the Barriers to the Use of an Internet-Register for Multiple Sclerosis," International Journal of Healthcare Information Systems and Informatics (IJHISI), IGI Global, vol. 8(1), pages 1-16, January.
    • Handle: RePEc:igg:jhisi0:v:8:y:2013:i:1:p:1-16
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    Cited by:

    1. Kerina H Jones & David V Ford & Philip A Jones & Ann John & Rodden M Middleton & Hazel Lockhart-Jones & Jeffrey Peng & Lisa A Osborne & J Gareth Noble, 2013. "How People with Multiple Sclerosis Rate Their Quality of Life: An EQ-5D Survey via the UK MS Register," PLOS ONE, Public Library of Science, vol. 8(6), pages 1-8, June.

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