IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v21y2024i6p790-d1416650.html
   My bibliography  Save this article

Rehabilitation Services for Young-Onset Dementia: Examples from High- and Low–Middle-Income Countries

Author

Listed:
  • Aida Suárez-González

    (Dementia Research Centre, UCL Queen Square Institute of Neurology, University College London (UCL), London WC1N 3BG, UK
    These authors contributed equally to this work.)

  • Sharon A Savage

    (School of Psychological Sciences, College of Engineering, Science and Environment, The University of Newcastle, Callaghan, NSW 2308, Australia
    These authors contributed equally to this work.)

  • Suvarna Alladi

    (Department of Neurology, National Institute of Mental Health and Neurosciences (NIMHANS), Hosur Road, Bangalore 560030, India)

  • Viviane Amaral-Carvalho

    (Departamento de Neurologia, Faculdade de Medicina da Universidade de São Paulo, São Paulo 01246-903, SP, Brazil
    Behavioral and Cognitive Neurology Unit, Faculdade de Medicina, Universidade Federal de Minas Gerais, Belo Horizonte 30130-100, MG, Brazil)

  • Faheem Arshad

    (Department of Neurology, National Institute of Mental Health and Neurosciences (NIMHANS), Hosur Road, Bangalore 560030, India)

  • Julieta Camino

    (Institute of Health and Social Care, London South Bank University, London SE1 0AA, UK
    School of Health Sciences, Faculty of Medicine and Health Sciences, University of East Anglia, Norwich NR4 7TQ, UK)

  • Paulo Caramelli

    (Behavioral and Cognitive Neurology Unit, Faculdade de Medicina, Universidade Federal de Minas Gerais, Belo Horizonte 30130-100, MG, Brazil)

  • Adelina Comas-Herrera

    (Care Policy and Evaluation Centre, London School of Economics and Political Science, London WC2A 2AZ, UK)

  • Julia Cook

    (Herefordshire and Worcestershire Health and Care NHS Trust, Worcester WR5 1JR, UK)

  • Claudia Cooper

    (Centre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University of London, London EC1M 6BQ, UK)

  • Laura García Díaz

    (School of Rehabilitation Science, McMaster University, Hamilton, ON L8S 1C7, Canada)

  • Stephanie M. Grasso

    (Department of Speech, Language and Hearing Sciences, University of Texas, Austin, TX 78712-1069, USA)

  • Regina Jokel

    (Rotman Research Institute, Toronto, ON M6A 2X8, Canada
    Faculty of Medicine, University of Toronto, Toronto, ON M5S 1A8, Canada
    Baycrest Health Sciences, Toronto, ON M6A 2E1, Canada)

  • Monica Lavoie

    (Chaire de Recherche sur les Aphasies Primaires Progressives—Fondation de la Famille LEMAIRE, CHU de Québec-Université Laval, Québec, QC G1V 0A6, Canada)

  • Tomás León

    (Memory Unit, Neurology Department, Memory and Neuropsychiatric Center (CMYN), Hospital del Salvador and Faculty of Medicine, University of Chile, Santiago 7500922, Chile
    Department of Psychiatry and Global Brain Health Institute, Trinity College, D02 K104 Dublin, Ireland)

  • Thomas Priya

    (Department of Psychiatric Social Work, National Institute of Mental Health and Neurosciences (NIMHANS), Hosur Road, Bangalore 560029, India)

  • Teresita Ramos Franco

    (Memory Unit, Neurology Department, Memory and Neuropsychiatric Center (CMYN), Hospital del Salvador and Faculty of Medicine, University of Chile, Santiago 7500922, Chile)

  • Cathleen Taylor-Rubin

    (Speech Pathology Department, War Memorial Hospital, Sydney, NSW 2024, Australia
    School of Psychological Sciences, Macquarie University, Sydney, NSW 2109, Australia)

  • Rosemary Townsend

    (Dyscover Ltd., Leatherhead KT22 0BN, UK)

  • Angelika Thöne-Otto

    (Clinic for Cognitive Neurology, University Hospital Leipzig, 04103 Leipzig, Germany
    Max-Planck Institute for Human Cognitive and Brain Sciences, 04103 Leipzig, Germany)

  • Andrea Slachevsky

    (Memory Unit, Neurology Department, Memory and Neuropsychiatric Center (CMYN), Hospital del Salvador and Faculty of Medicine, University of Chile, Santiago 7500922, Chile
    Geroscience Center for Brain Health and Metabolism (GERO), Santiago 7500922, Chile
    Neuropsychology and Clinical Neuroscience Laboratory (LANNEC), Physiopatology Program—Institute of Biomedical Sciences (ICBM), Neuroscience and East Neuroscience Departments, Faculty of Medicine, University of Chile, Santiago 7500922, Chile
    Neurology and Psychiatry Department, Clínica Alemana-Universidad Desarrollo, Santiago 7650568, Chile)

  • Anna Volkmer

    (Division of Psychology and Language Sciences, University College London (UCL), London WC1H 0AP, UK)

  • Wendy Weidner

    (Alzheimer’s Disease International, London SE1 4PU, UK)

  • Claire MC O’Connor

    (Centre for Positive Ageing, HammondCare, Sydney, NSW 2170, Australia
    School of Psychology, Faculty of Sciences, University of New South Wales, Sydney, NSW 2052, Australia
    Neuroscience Research Australia, Sydney, NSW 2031, Australia)

Abstract

The WHO Dementia Global Action Plan states that rehabilitation services for dementia are required to promote health, reduce disability, and maintain quality of life for those living with dementia. Current services, however, are scarce, particularly for people with young-onset dementia (YOD). This article, written by an international group of multidisciplinary dementia specialists, offers a three-part overview to promote the development of rehabilitation services for YOD. Firstly, we provide a synthesis of knowledge on current evidence-based rehabilitative therapies for early-onset Alzheimer’s disease (EOAD), behavioural variant frontotemporal dementia (bvFTD), primary progressive aphasia (PPA), and posterior cortical atrophy (PCA). Secondly, we discuss the characteristics of rehabilitation services for YOD, providing examples across three continents for how these services can be embedded in existing settings and the different roles of the rehabilitation multidisciplinary team. Lastly, we conclude by highlighting the potential of telehealth in making rehabilitation services more accessible for people with YOD. Overall, with this paper, we aim to encourage clinical leads to begin introducing at least some rehabilitation into their services, leveraging existing resources and finding support in the collective expertise of the broader multidisciplinary dementia professional community.

Suggested Citation

  • Aida Suárez-González & Sharon A Savage & Suvarna Alladi & Viviane Amaral-Carvalho & Faheem Arshad & Julieta Camino & Paulo Caramelli & Adelina Comas-Herrera & Julia Cook & Claudia Cooper & Laura Garcí, 2024. "Rehabilitation Services for Young-Onset Dementia: Examples from High- and Low–Middle-Income Countries," IJERPH, MDPI, vol. 21(6), pages 1-16, June.
    • Handle: RePEc:gam:jijerp:v:21:y:2024:i:6:p:790-:d:1416650
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/21/6/790/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/21/6/790/
    Download Restriction: no
    ---><---

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:21:y:2024:i:6:p:790-:d:1416650. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    We have no bibliographic references for this item. You can help adding them by using this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.