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Optimising Online Peer Support for People with Young Onset Dementia

Author

Listed:
  • Esther Vera Gerritzen

    (Institute of Mental Health, Mental Health and Clinical Neuroscience, School of Medicine, University of Nottingham, Nottingham NG7 2TU, UK)

  • Martin Orrell

    (Institute of Mental Health, Mental Health and Clinical Neuroscience, School of Medicine, University of Nottingham, Nottingham NG7 2TU, UK)

  • Orii McDermott

    (Institute of Mental Health, Mental Health and Clinical Neuroscience, School of Medicine, University of Nottingham, Nottingham NG7 2TU, UK)

Abstract

People with Young Onset Dementia (YOD) can be hesitant to engage with online peer support. This work aims to explore (1) why people are hesitant to engage in online peer support, (2) how to get more people involved in online peer support, and (3) what makes online peer support work well. Nine interviews with people with YOD were conducted on MS Teams. Participants were recruited through purposive sampling. Data were analysed thematically. Reasons for being hesitant to engage with online peer support include being unsure what to expect and concerns about seeing others in more advanced stages of dementia. Additionally, it can be difficult to identify groups that suit one’s needs and interests. Group facilitators of online peer support groups should provide a detailed description of their group so that people can better assess whether the group would suit them. The insights obtained from this study will be used to develop a Best Practice Guidance on online peer support for people with YOD. Moreover, the findings can be useful for further research exploring how to support people with dementia in general in accessing online health and social care services.

Suggested Citation

  • Esther Vera Gerritzen & Martin Orrell & Orii McDermott, 2024. "Optimising Online Peer Support for People with Young Onset Dementia," IJERPH, MDPI, vol. 21(1), pages 1-13, January.
    • Handle: RePEc:gam:jijerp:v:21:y:2024:i:1:p:60-:d:1312239
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    References listed on IDEAS

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    1. Linda Barclay & Aislinn Lalor, 2022. "Investigating the Challenges and Benefits of Engaging in Peer Support via Videoconferencing for People with Spinal Cord Injury," IJERPH, MDPI, vol. 19(8), pages 1-10, April.
    2. Monica Cations & Adrienne Withall & Ruth Horsfall & Nicole Denham & Fiona White & Julian Trollor & Clement Loy & Henry Brodaty & Perminder Sachdev & Peter Gonski & Apo Demirkol & Robert G Cumming & Br, 2017. "Why aren't people with young onset dementia and their supporters using formal services? Results from the INSPIRED study," PLOS ONE, Public Library of Science, vol. 12(7), pages 1-15, July.
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    Cited by:

    1. Alexander Mitchell & Wendy Kelso & Camille Paynter & Leanne Hayes & Dennis Velakoulis & Samantha M. Loi, 2024. "Peer Support for Caregivers of People Living with Posterior Cortical Atrophy in Melbourne, Australia: A Feasibility Study," IJERPH, MDPI, vol. 21(4), pages 1-10, April.

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