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COVID-19 Public Health Measures and Patient and Public Involvement in Health and Social Care Research: An Umbrella Review

Author

Listed:
  • Negin Fouladi

    (Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA)

  • Nedelina Tchangalova

    (STEM Library, University of Maryland, College Park, MD 20742, USA)

  • Damilola Ajayi

    (Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA)

  • Elizabeth Millwee

    (Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA)

  • Corinne Lovett

    (Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA)

  • Alana Del Sordi

    (Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA)

  • Samantha Liggett

    (Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA)

  • Malki De Silva

    (Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA)

  • Laura Bonilla

    (Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA)

  • Angel Nkwonta

    (Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA)

  • Leah Ramnarine

    (Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA)

  • Allyssa Munoz

    (Department of Health Policy and Management, School of Public Health, University of Maryland, College Park, MD 20742, USA)

  • Kate Frazer

    (School of Nursing, Midwifery and Health Systems, University College Dublin, D04 V1W8 Dublin, Ireland)

  • Thilo Kroll

    (School of Nursing, Midwifery and Health Systems, University College Dublin, D04 V1W8 Dublin, Ireland)

Abstract

An umbrella review of previously published systematic reviews was conducted to determine the nature and extent of the patient and public involvement (PPI) in COVID-19 health and social care research and identify how PPI has been used to develop public health measures (PHM). In recent years, there has been a growing emphasis on PPI in research as it offers alternative perspectives and insight into the needs of healthcare users to improve the quality and relevance of research. In January 2022, nine databases were searched from 2020–2022, and records were filtered to identify peer-reviewed articles published in English. From a total of 1437 unique records, 54 full-text articles were initially evaluated, and six articles met the inclusion criteria. The included studies suggest that PHM should be attuned to communities within a sociocultural context. Based on the evidence included, it is evident that PPI in COVID-19-related research is varied. The existing evidence includes written feedback, conversations with stakeholders, and working groups/task forces. An inconsistent evidence base exists in the application and use of PPI in PHM. Successful mitigation efforts must be community specific while making PPI an integral component of shared decision-making.

Suggested Citation

  • Negin Fouladi & Nedelina Tchangalova & Damilola Ajayi & Elizabeth Millwee & Corinne Lovett & Alana Del Sordi & Samantha Liggett & Malki De Silva & Laura Bonilla & Angel Nkwonta & Leah Ramnarine & Ally, 2023. "COVID-19 Public Health Measures and Patient and Public Involvement in Health and Social Care Research: An Umbrella Review," IJERPH, MDPI, vol. 20(6), pages 1-19, March.
    • Handle: RePEc:gam:jijerp:v:20:y:2023:i:6:p:4887-:d:1093250
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    References listed on IDEAS

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    1. Christopher B. Raymond & Paul R. Ward, 2021. "Community-Level Experiences, Understandings, and Responses to COVID-19 in Low- and Middle-Income Countries: A Systematic Review of Qualitative and Ethnographic Studies," IJERPH, MDPI, vol. 18(22), pages 1-26, November.
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