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Parenting in Cerebral Palsy: Understanding the Perceived Challenges and Needs Faced by Parents of Elementary School Children

Author

Listed:
  • Ana Guimarães

    (Psychology Research Center, School of Psychology, University of Minho, 4710-057 Braga, Portugal
    These authors contributed equally to the authorship and should be listed as co-first authors.)

  • Armanda Pereira

    (Department of Education and Psychology, School of Human and Social Sciences, University of Trás-os-Montes and Alto Douro, 5000-801 Vila Real, Portugal
    These authors contributed equally to the authorship and should be listed as co-first authors.)

  • André Oliveira

    (Psychology Research Center, School of Psychology, University of Minho, 4710-057 Braga, Portugal)

  • Sílvia Lopes

    (Psychology Research Center, School of Psychology, University of Minho, 4710-057 Braga, Portugal)

  • Ana Rita Nunes

    (School Psychology Office, Agrupamento de Escolas da Nazaré, 2450-284 Nazaré, Portugal)

  • Cleia Zanatta

    (Centro de Ciências da Saúde, Catholic University of Petrópolis, Petrópolis, Rio de Janeiro 25685-100, Brazil)

  • Pedro Rosário

    (Psychology Research Center, School of Psychology, University of Minho, 4710-057 Braga, Portugal)

Abstract

Cerebral palsy (CP) can be considered the most frequent childhood physical disorder. The severity and type of dysfunction depend on the brain injury. Movement and posture are the most affected areas. CP is a lifelong condition, and parenting a child with this disorder brings additional challenges (e.g., dealing with grief) and needs (e.g., information). Identifying and characterizing their challenges and needs are pivotal to enrich the knowledge in this field and help draw more suitable support for parents. Interviews with 11 parents of children with CP attending elementary school were conducted. The discourse was transcribed, and a thematic analysis was performed. Three themes emerged from the data: (i) challenges of parenting a child with CP (e.g., internal challenges), (ii) crucial needs for parents to cope with a child with CP (e.g., information), and (iii) the intersection between challenges and needs of parents of children with CP (e.g., unawareness). Regarding the challenges and needs characterization, lifespan was the most frequent period of child development, and the microsystem was the context of life most reported. The findings may inform the design of educational and remediation interventions to support families of children with CP attending elementary school.

Suggested Citation

  • Ana Guimarães & Armanda Pereira & André Oliveira & Sílvia Lopes & Ana Rita Nunes & Cleia Zanatta & Pedro Rosário, 2023. "Parenting in Cerebral Palsy: Understanding the Perceived Challenges and Needs Faced by Parents of Elementary School Children," IJERPH, MDPI, vol. 20(5), pages 1-16, February.
    • Handle: RePEc:gam:jijerp:v:20:y:2023:i:5:p:3811-:d:1075474
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    References listed on IDEAS

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    1. Hennink, Monique & Kaiser, Bonnie N., 2022. "Sample sizes for saturation in qualitative research: A systematic review of empirical tests," Social Science & Medicine, Elsevier, vol. 292(C).
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