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Opportunities and Obstacles to the Development of Health Data Warehouses in Hospitals in France: The Recent Experience of Comprehensive Cancer Centers

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  • François Bocquet

    (Data Factory & Analytics Department, Institut de Cancérologie de l’Ouest, 44805 Nantes-Angers, France
    Law and Social Change Laboratory, Faculty of Law and Political Sciences, CNRS UMR 6297, Nantes University, 44313 Nantes, France)

  • Judith Raimbourg

    (Oncology Department, Institut de Cancérologie de l’Ouest, 44805 Nantes-Angers, France
    Center for Research in Cancerology and Immunology Nantes-Angers, INSERM UMR 1232, Nantes University and Angers University, 44035 Nantes-Angers, France)

  • Frédéric Bigot

    (Oncology Department, Institut de Cancérologie de l’Ouest, 44805 Nantes-Angers, France)

  • Victor Simmet

    (Oncology Department, Institut de Cancérologie de l’Ouest, 44805 Nantes-Angers, France)

  • Mario Campone

    (Oncology Department, Institut de Cancérologie de l’Ouest, 44805 Nantes-Angers, France
    Center for Research in Cancerology and Immunology Nantes-Angers, INSERM UMR 1232, Nantes University and Angers University, 44035 Nantes-Angers, France)

  • Jean-Sébastien Frenel

    (Oncology Department, Institut de Cancérologie de l’Ouest, 44805 Nantes-Angers, France
    Center for Research in Cancerology and Immunology Nantes-Angers, INSERM UMR 1232, Nantes University and Angers University, 44035 Nantes-Angers, France)

Abstract

Big Data and Artificial Intelligence can profoundly transform medical practices, particularly in oncology. Comprehensive Cancer Centers have a major role to play in this revolution. With the purpose of advancing our knowledge and accelerating cancer research, it is urgent to make this pool of data usable through the development of robust and effective data warehouses. Through the recent experience of Comprehensive Cancer Centers in France, this article shows that, while the use of hospital data warehouses can be a source of progress by taking into account multisource, multidomain and multiscale data for the benefit of knowledge and patients, it nevertheless raises technical, organizational and legal issues that still need to be addressed. The objectives of this article are threefold: 1. to provide insight on public health stakes of development in Comprehensive Cancer Centers to manage cancer patients comprehensively; 2. to set out a challenge of structuring the data from within them; 3. to outline the legal issues of implementation to carry out real-world evidence studies. To meet objective 1, this article firstly proposed a discussion on the relevance of an integrated approach to manage cancer and the formidable tool that data warehouses represent to achieve this. To address objective 2, we carried out a literature review to screen the articles published in PubMed and Google Scholar through the end of 2022 on the use of data warehouses in French Comprehensive Cancer Centers. Seven publications dealing specifically with the issue of data structuring were selected. To achieve objective 3, we presented and commented on the main aspects of French and European legislation and regulations in the field of health data, hospital data warehouses and real-world evidence.

Suggested Citation

  • François Bocquet & Judith Raimbourg & Frédéric Bigot & Victor Simmet & Mario Campone & Jean-Sébastien Frenel, 2023. "Opportunities and Obstacles to the Development of Health Data Warehouses in Hospitals in France: The Recent Experience of Comprehensive Cancer Centers," IJERPH, MDPI, vol. 20(2), pages 1-13, January.
  • Handle: RePEc:gam:jijerp:v:20:y:2023:i:2:p:1645-:d:1037868
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    References listed on IDEAS

    as
    1. François Bocquet & Mario Campone & Marc Cuggia, 2022. "The Challenges of Implementing Comprehensive Clinical Data Warehouses in Hospitals," IJERPH, MDPI, vol. 19(12), pages 1-6, June.
    2. Olivier Lauzanne & Jean-Sébastien Frenel & Mustapha Baziz & Mario Campone & Judith Raimbourg & François Bocquet, 2022. "Optimizing the Retrieval of the Vital Status of Cancer Patients for Health Data Warehouses by Using Open Government Data in France," IJERPH, MDPI, vol. 19(7), pages 1-12, April.
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    1. François Bocquet & Mario Campone & Marc Cuggia, 2022. "The Challenges of Implementing Comprehensive Clinical Data Warehouses in Hospitals," IJERPH, MDPI, vol. 19(12), pages 1-6, June.

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