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The Perception of the Quality of Professional Healthcare Assistance for the Management of Endometriosis: Findings from a National Survey in Italy

Author

Listed:
  • Vincenza Cofini

    (Department of Life, Health and Environmental Sciences, University of L’Aquila, 67100 L’Aquila, Italy)

  • Mario Muselli

    (Department of Life, Health and Environmental Sciences, University of L’Aquila, 67100 L’Aquila, Italy)

  • Erika Limoncin

    (Department of Dynamic, Clinical Psychology and Health Sciences, Sapienza University of Rome, 00185 Rome, Italy)

  • Chiara Lolli

    (Department of Life, Health and Environmental Sciences, University of L’Aquila, 67100 L’Aquila, Italy)

  • Erika Pelaccia

    (Department of Life, Health and Environmental Sciences, University of L’Aquila, 67100 L’Aquila, Italy)

  • Maurizio Guido

    (Department of Life, Health and Environmental Sciences, University of L’Aquila, 67100 L’Aquila, Italy)

  • Leila Fabiani

    (Department of Life, Health and Environmental Sciences, University of L’Aquila, 67100 L’Aquila, Italy)

  • Stefano Necozione

    (Department of Life, Health and Environmental Sciences, University of L’Aquila, 67100 L’Aquila, Italy)

Abstract

(1) Background: endometriosis is included in the list of chronic and disabling pathologies. This study aimed to examine patients’ points of view about the quality of care for endometriosis during the COVID-19 pandemic; (2) Methods: we conducted a survey on knowledge about endometriosis, management of endometriosis, perceived mental and physical well-being, and perceived changes in the quality of care during the pandemic; (3) Results: out of 1065 participants, 875 were included in the analysis, with an average age of 34. Overall, patients had positive perceptions of care accessibility and cleanliness (95%), but less satisfaction with visit hours (86%). Those with better physical and psychological health were more satisfied with service hours, while those treated at specialised centres were more content with cleanliness. Satisfaction with clarity was linked to specialist treatment, and perceived availability to listen correlated with age, complications, and overall health status; (4) Conclusions: patients’ perspectives are crucial for patient education and advocate for specialised interdisciplinary networks to support endometriosis management and patients’ well-being. These findings highlight the importance of considering patient viewpoints, particularly in the context of the COVID-19 pandemic’s impact on healthcare systems and suggest a need for further research from the patient’s perspective.

Suggested Citation

  • Vincenza Cofini & Mario Muselli & Erika Limoncin & Chiara Lolli & Erika Pelaccia & Maurizio Guido & Leila Fabiani & Stefano Necozione, 2023. "The Perception of the Quality of Professional Healthcare Assistance for the Management of Endometriosis: Findings from a National Survey in Italy," IJERPH, MDPI, vol. 20(21), pages 1-19, October.
  • Handle: RePEc:gam:jijerp:v:20:y:2023:i:21:p:6978-:d:1267595
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    References listed on IDEAS

    as
    1. Vincenza Cofini & Mario Muselli & Chiara Lolli & Leila Fabiani & Stefano Necozione, 2022. "Does Quality of Care (QoC) Perception Influence the Quality of Life (QoL) in Women with Endometriosis? Results from an Italian Nationwide Survey during Covid Pandemic," IJERPH, MDPI, vol. 20(1), pages 1-15, December.
    2. Omar T. Sims & Jhumka Gupta & Stacey A. Missmer & Irene O. Aninye, 2021. "Stigma and Endometriosis: A Brief Overview and Recommendations to Improve Psychosocial Well-Being and Diagnostic Delay," IJERPH, MDPI, vol. 18(15), pages 1-12, August.
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    1. Vincenza Cofini & Mario Muselli & Chiara Lolli & Leila Fabiani & Stefano Necozione, 2022. "Does Quality of Care (QoC) Perception Influence the Quality of Life (QoL) in Women with Endometriosis? Results from an Italian Nationwide Survey during Covid Pandemic," IJERPH, MDPI, vol. 20(1), pages 1-15, December.
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