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Caring for People with Rare Diseases: A Systematic Review of the Challenges of, and Strategies for Dealing with, COVID-19

Author

Listed:
  • Elena Faccio

    (Department of Philosophy, Sociology, Education and Applied Psychology, University of Padua, 35139 Padova, Italy
    Authors share first authorship.)

  • Matteo Bottecchia

    (Department of Philosophy, Sociology, Education and Applied Psychology, University of Padua, 35139 Padova, Italy
    Authors share first authorship.)

  • Michele Rocelli

    (Department of Philosophy, Sociology, Education and Applied Psychology, University of Padua, 35139 Padova, Italy
    Authors share first authorship.)

Abstract

The COVID-19 pandemic took a toll on everyone’s lives, and patients with rare diseases (RDs) had to pay an even higher price. In this systematic review, we explored the impact of the COVID-19 pandemic on individuals with RDs from a psychological perspective. Using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, we retrieved articles from the Google Scholar, Scopus, and PubMed databases focusing on ‘COVID-19,’ ‘psychology,’ and ‘rare diseases.’ Seventeen primary articles were identified (mainly from continental Europe). The results revealed the psychological effects of the pandemic on rare disease patients, including increased anxiety, stress, and depressive moods. This review also highlighted the increased vulnerability and reduced quality of life of rare disease patients during the pandemic, as well as the importance of telecare and psychological support as critical interventions for improving their well-being. There is an urgent need for multidisciplinary research and stronger healthcare systems to meet the unique challenges of rare disease patients, who represent 3.5–5.9% of the global population.

Suggested Citation

  • Elena Faccio & Matteo Bottecchia & Michele Rocelli, 2023. "Caring for People with Rare Diseases: A Systematic Review of the Challenges of, and Strategies for Dealing with, COVID-19," IJERPH, MDPI, vol. 20(19), pages 1-15, September.
    • Handle: RePEc:gam:jijerp:v:20:y:2023:i:19:p:6863-:d:1250871
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