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iSupport for Young Carers: An Adaptation of an e-Health Intervention for Young Dementia Carers

Author

Listed:
  • Patricia Masterson-Algar

    (School of Medical and Health Sciences, Bangor University, Bangor LL57 2EF, UK)

  • Kieren Egan

    (Department of Computer and Information Science, University of Strathclyde, Glasgow G11 XH, UK)

  • Greg Flynn

    (School of Medical and Health Sciences, Bangor University, Bangor LL57 2EF, UK)

  • Gwenllian Hughes

    (School of Medical and Health Sciences, Bangor University, Bangor LL57 2EF, UK)

  • Aimee Spector

    (Department of Clinical, Educational and Health Psychology, University College London, London WC1E 6BT, UK)

  • Joshua Stott

    (Department of Clinical, Educational and Health Psychology, University College London, London WC1E 6BT, UK)

  • Gill Windle

    (School of Medical and Health Sciences, Bangor University, Bangor LL57 2EF, UK)

Abstract

Young dementia carers need to be recognised and supported in their role. They need help to understand the illness, what changes are expected and how it can affect their family member. Many support services, partly due to the COVID pandemic, have moved online and have been shown to be acceptable as they are low cost and reduce access barriers. iSupport is an evidence-informed e-health training programme developed by the World Health Organization (WHO) to support adult dementia carers. This paper reports on the co-design of an adapted version of iSupport for young carers. A theoretically driven co-design approach, drawing on the lived experiences of young dementia carers and experts who work with this target group was followed. As a result of this study iSupport for Young Carers was created. It is the first e-health intervention of its kind and aims to support the mental health, knowledge and skills of young dementia carers. In turn, it could improve the quality of the support that service providers can offer, and this can result in increased levels of identification of these young people. The work presented also provides opportunities for other countries and demographic groups to translate and adapt iSupport for Young Carers to their specific cultural context.

Suggested Citation

  • Patricia Masterson-Algar & Kieren Egan & Greg Flynn & Gwenllian Hughes & Aimee Spector & Joshua Stott & Gill Windle, 2022. "iSupport for Young Carers: An Adaptation of an e-Health Intervention for Young Dementia Carers," IJERPH, MDPI, vol. 20(1), pages 1-18, December.
    • Handle: RePEc:gam:jijerp:v:20:y:2022:i:1:p:127-:d:1011282
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    References listed on IDEAS

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    1. Trudi M. Cameron & Marion F. Walker & Rebecca J. Fisher, 2022. "A Qualitative Study Exploring the Lives and Caring Practices of Young Carers of Stroke Survivors," IJERPH, MDPI, vol. 19(7), pages 1-17, March.
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    Cited by:

    1. Bethan Naunton Morgan & Gill Windle & Carolien Lamers & Emilie Brotherhood & Sebastian Crutch, 2023. "Adaptation of an eHealth Intervention: iSupport for Carers of People with Rare Dementias," IJERPH, MDPI, vol. 21(1), pages 1-19, December.

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