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Whether Disabled Parents Receive Personal Assistance for Parenting and the Consequences for Children—An Interview Study

Author

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  • Ulrika Järkestig Berggren

    (Department of Social Work, Linnaeus University, 39231 Kalmar, Sweden)

  • Ann-Sofie Bergman

    (Department of Social Work, Stockholm University, 10691 Stockholm, Sweden)

Abstract

Personal assistance, since its implementation in 1993, has been shown to provide support for persons with severe functional disabilities in their everyday life, ensuring inclusion in societal roles such as working life. Personal assistance (PA) may also provide support in parenting; however, with the right to PA becoming increasingly questioned in Sweden, parents with disabilities have varying experiences of receiving support for their role as parents. Experiences also differ in regard to how access to a personal assistant is important to their child’s daily life. The aim of this article is to shed light on the meaning of PA for parents and children in everyday life, especially when PA is reduced or even withdrawn. Eleven parents who have had or presently have PA were interviewed. The results show that parents describe that PA help them to fullfil their parental roles although the support could be more flexible to the needs of parents and their children. In situations when PA has been denied, children are negatively impacted and some children act by taking on responsibilities for the care of their parent. In conclusion; childrens’ perspective of their family life needs to be taken in consideration when assessing the rights to PA.

Suggested Citation

  • Ulrika Järkestig Berggren & Ann-Sofie Bergman, 2022. "Whether Disabled Parents Receive Personal Assistance for Parenting and the Consequences for Children—An Interview Study," IJERPH, MDPI, vol. 19(6), pages 1-10, March.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:6:p:3330-:d:769155
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    References listed on IDEAS

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    1. Evan Mayo‐Wilson & Paul Montgomery & Jane Dennis, 2008. "Personal Assistance for Adults (19‐64) with Physical Impairments," Campbell Systematic Reviews, John Wiley & Sons, vol. 4(1), pages 1-36.
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    Cited by:

    1. Juan Andrés Pino-Morán & Pía Rodríguez-Garrido & María Soledad Burrone, 2023. "Politico-Epistemic Tensions Regarding Personal Assistance and Care for People with Disabilities: An Integrative Literature Review," IJERPH, MDPI, vol. 20(2), pages 1-21, January.

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