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The Quality of Life of Children with Epilepsy and the Impact of the Disease on the Family Functioning

Author

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  • Anna Rozensztrauch

    (Department of Nursing and Obstetrics, Division of Family and Pediatric Nursing, Wroclaw Medical University, Poland 1, 51-618 Wrocław, Poland)

  • Aleksandra Kołtuniuk

    (Department of Nursing and Obstetrics, Division of Internal Medicine Nursing, Wroclaw Medical University, Poland 1, 51-618 Wrocław, Poland)

Abstract

Epilepsy is a neurological chronic disease, which negatively affects physical, psychological and social functioning of children and their families. The main objective of this study was to assess the quality of life (QoL) in children with diagnosed epilepsy and the impact of a child’s disease on the functioning of the family. Method: A cross-sectional survey involved a total of 103 legal guardians of children with diagnosed epilepsy. QoL was measured by PedsQL 4.0, with appropriate forms for specific age groups, the impact of a child’s condition on the functioning of the family was measured by PedsQL 2.0 Family Impact Module, and the authors’ own questionnaire was used to collect sociodemographic and medical data. Results: Subjects reported a decreased level of family daily activities (total score: 32.4 out of 100, SD = 26.5) and relationships (total score: 55.63 out of 100, SD = 24.03). QoL in children aged 5–7 years is lower by an average of 11.956 points as compared with children aged 2–4 years. Comorbidities had a significant impact ( p < 0.05) on QoL in all domains. The overall QoL has reported a low score of 46.42 out of 100, respectively (SD ± 20.95), with the highest mean scores reported for the social functioning (total score: 49.4, SD = 27.3) and the physical functioning (total score: 49.4, SD = 28.4) and with the lowest mean score reported for the work/school functioning (total score: 42.3, SD = 27.8). Conclusions: Child’s epilepsy shows a considerable negative impact on the QoL of children and family functioning.

Suggested Citation

  • Anna Rozensztrauch & Aleksandra Kołtuniuk, 2022. "The Quality of Life of Children with Epilepsy and the Impact of the Disease on the Family Functioning," IJERPH, MDPI, vol. 19(4), pages 1-13, February.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:4:p:2277-:d:751476
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    References listed on IDEAS

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    1. Ester Villalonga-Olives & Ichiro Kawachi & Josué Almansa & Claudia Witte & Benjamin Lange & Christiane Kiese-Himmel & Nicole von Steinbüchel, 2014. "Pediatric Health-Related Quality of Life: A Structural Equation Modeling Approach," PLOS ONE, Public Library of Science, vol. 9(11), pages 1-8, November.
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    Cited by:

    1. Isabelle Gansella Rocha Da Costa & Beatriz Helena Brugnaro & Camila Resende Gâmbaro Lima & Olaf Kraus de Camargo & Lais Fumincelli & Silvia Letícia Pavão & Nelci Adriana Cicuto Ferreira Rocha, 2023. "Perceived Social Support and Quality of Life of Children with and without Developmental Disabilities and Their Caregivers during the COVID-19 Pandemic in Brazil: A Cross-Sectional Study," IJERPH, MDPI, vol. 20(5), pages 1-14, March.

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