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Exploring the Relationship between Medical Research Literacy and Respondents’ Expressed Likelihood to Participate in a Clinical Trial

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Listed:
  • Jennifer Dykema

    (Department of Sociology, University of Wisconsin-Madison, Madison, WI 53706, USA
    University of Wisconsin Survey Center, University of Wisconsin-Madison, Madison, WI 53706, USA)

  • Cameron P. Jones

    (University of Wisconsin Survey Center, University of Wisconsin-Madison, Madison, WI 53706, USA
    Department of Statistics, University of Wisconsin-Madison, Madison, WI 53706, USA)

  • Dana Garbarski

    (Department of Sociology, Loyola University Chicago, Chicago, IL 60660, USA)

  • Mia Farias

    (University of Wisconsin Survey Center, University of Wisconsin-Madison, Madison, WI 53706, USA)

  • Dorothy Farrar Edwards

    (Departments of Kinesiology and Medicine, University of Wisconsin-Madison, Madison, WI 53706, USA)

Abstract

Medical research literacy (MRL) is a facet of health literacy that measures a person’s understanding of informed consent and other aspects of participation in medical research. While existing research on MRL is limited, there are reasons to believe MRL may be associated with a willingness to participate in medical research. We use data from a racially balanced sample of survey respondents (n = 410): (1) to analyze how MRL scores vary by respondents’ socio-demographic characteristics; (2) to examine how MRL relates to respondents’ expressed likelihood to participate in a clinical trial; and (3) to provide considerations on the measurement of MRL. The results indicate no differences in MRL scores by race or gender; younger ( p < 0.05) and more educated ( p < 0.001) individuals have significantly higher MRL scores. Further, higher MRL scores are associated with significantly lower levels of expressed likelihood to participate in a clinical trial. Additionally, the MRL scale included both true and false statements, and analyses demonstrate significant differences in how these relate to outcomes. Altogether, the results signal that further research is needed to understand MRL and how it relates to socio-demographic characteristics associated with research participation and can be measured effectively.

Suggested Citation

  • Jennifer Dykema & Cameron P. Jones & Dana Garbarski & Mia Farias & Dorothy Farrar Edwards, 2022. "Exploring the Relationship between Medical Research Literacy and Respondents’ Expressed Likelihood to Participate in a Clinical Trial," IJERPH, MDPI, vol. 19(22), pages 1-13, November.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:22:p:15168-:d:975487
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    References listed on IDEAS

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    1. Lingnan He & Yue Chen & Xiling Xiong & Xiqian Zou & Kaisheng Lai, 2021. "Does Science Literacy Guarantee Resistance to Health Rumors? The Moderating Effect of Self-Efficacy of Science Literacy in the Relationship between Science Literacy and Rumor Belief," IJERPH, MDPI, vol. 18(5), pages 1-10, February.
    2. Margarita Echeverri & David Anderson & Anna María Nápoles & Jacqueline M. Haas & Marc E. Johnson & Friar Sergio A. Serrano, 2018. "Cancer Health Literacy and Willingness to Participate in Cancer Research and Donate Bio-Specimens," IJERPH, MDPI, vol. 15(10), pages 1-18, September.
    3. Nejc Plohl & Bojan Musil, 2022. "Understanding, Trusting, and Applying Scientific Insights to Improve Your Health: A Latent Profile Analysis Approach," IJERPH, MDPI, vol. 19(16), pages 1-16, August.
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