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Demands on Health Information and Clinical Practice Guidelines for Patients from the Perspective of Adults with Mental Illness and Family Members: A Qualitative Study with In-Depth Interviews

Author

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  • Katja Schladitz

    (Institute of Social Medicine, Occupational Health and Public Health (ISAP), Medical Faculty, University of Leipzig, 04103 Leipzig, Germany)

  • Elena C. Weitzel

    (Institute of Social Medicine, Occupational Health and Public Health (ISAP), Medical Faculty, University of Leipzig, 04103 Leipzig, Germany)

  • Margrit Löbner

    (Institute of Social Medicine, Occupational Health and Public Health (ISAP), Medical Faculty, University of Leipzig, 04103 Leipzig, Germany)

  • Bettina Soltmann

    (Institute of Clinical Psychology and Psychotherapy, Medizinische Fakultät Carl Gustav Carus, TU Dresden, 01062 Dresden, Germany)

  • Frank Jessen

    (Department of Psychiatry and Psychotherapy, Faculty of Medicine, University Hospital Cologne, University of Cologne, 50937 Köln, Germany)

  • Jochen Schmitt

    (Center for Evidence-Based Healthcare (ZEGV), Medizinische Fakultät Carl Gustav Carus, TU Dresden, 01069 Dresden, Germany)

  • Andrea Pfennig

    (Institute of Clinical Psychology and Psychotherapy, Medizinische Fakultät Carl Gustav Carus, TU Dresden, 01062 Dresden, Germany)

  • Steffi G. Riedel-Heller

    (Institute of Social Medicine, Occupational Health and Public Health (ISAP), Medical Faculty, University of Leipzig, 04103 Leipzig, Germany
    These authors contributed equally to this work.)

  • Uta Gühne

    (Institute of Social Medicine, Occupational Health and Public Health (ISAP), Medical Faculty, University of Leipzig, 04103 Leipzig, Germany
    These authors contributed equally to this work.)

Abstract

(1) Background: “Patient health information” promote health literacy. “Patient guidelines” as a sub group reflect the current evidence about illnesses and treatment options adapted to the needs of laypersons. Little is known about factors promoting and hindering their use by people affected by mental illness and their relatives. (2) Methods: Telephone interviews ( N = 15; n = 4 adults affected by mental illness, n = 5 relatives, n = 6 both applicable) were conducted according to the Sørensen model of health literacy. Data were recorded, transcribed and content-analyzed following Mayring . (3) Results: Health information is used regularly by individuals affected by mental illness and their relatives, but “patient guidelines” are largely unknown. Yet, there is a great willingness to use them. Main barriers are a lack of statistical knowledge, the complexity of health-related topics and cognitive impairment sometimes accompanying mental illnesses. Target group-oriented adaptation as well as transparent and even-handed presentation of (dis-)advantages of treatment options can increase trust. (4) Conclusions: Health information and guidelines can help affected persons and relatives to make treatment decisions by conveying unbiased, up-to-date knowledge. Target group-specific adaptations should be made for psychiatric illnesses and features specific to mental illnesses compared to physical illnesses should be included. Clinical practice guidelines must be distributed more widely to increase their impact.

Suggested Citation

  • Katja Schladitz & Elena C. Weitzel & Margrit Löbner & Bettina Soltmann & Frank Jessen & Jochen Schmitt & Andrea Pfennig & Steffi G. Riedel-Heller & Uta Gühne, 2022. "Demands on Health Information and Clinical Practice Guidelines for Patients from the Perspective of Adults with Mental Illness and Family Members: A Qualitative Study with In-Depth Interviews," IJERPH, MDPI, vol. 19(21), pages 1-23, November.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:21:p:14262-:d:959767
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    References listed on IDEAS

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    1. Josie M. Rudolphi & Richard Berg & Barbara Marlenga, 2019. "Who and How: Exploring the Preferred Senders and Channels of Mental Health Information for Wisconsin Farmers," IJERPH, MDPI, vol. 16(20), pages 1-9, October.
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