IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v19y2022i15p8967-d869845.html
   My bibliography  Save this article

Important End-of-Life Topics among Latino Patients and Caregivers Coping with Advanced Cancer

Author

Listed:
  • Lianel Rosario-Ramos

    (School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico)

  • Keishliany Suarez

    (School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico)

  • Cristina Peña-Vargas

    (Ponce’s Research Institute, Ponce Health Sciences University, Ponce 00716, Puerto Rico)

  • Yoamy Toro-Morales

    (School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico)

  • Rosario Costas-Muñiz

    (Memorial Sloan-Kettering Cancer Center, Department of Psychiatry & Behavioral Sciences, New York, NY 10065, USA)

  • Eida Castro

    (School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico
    Ponce’s Research Institute, Ponce Health Sciences University, Ponce 00716, Puerto Rico)

  • Stephanie Torres

    (School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico)

  • Normarie Torres-Blasco

    (School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico
    Ponce’s Research Institute, Ponce Health Sciences University, Ponce 00716, Puerto Rico)

Abstract

There is a known end-of-life related disparity among Latino individuals, and there is a need to develop culturally sensitive interventions to help patients and caregivers cope with advanced cancer. Latino patients and caregivers coping with advanced cancer were asked to list important end-of-life topics to culturally inform a psychosocial intervention adaptation process. A qualitative study was conducted, and semi-structured interviews were performed, audio-recorded, and transcribed. Recordings and transcriptions were reviewed and analyzed using thematic content coding. The semi-structured interview described and demonstrated intervention components and elicited feedback about each. Free listing method was used to assess important topics among Latino advanced cancer patients ( n = 14; stage III and IV) and caregivers. Patients and caregivers were given a list of 15 topics and asked which topics they deemed important to integrate into the intervention. Overall, more than half of the participants considered it important to include 13 of the 15 topics related to daily activities (eight subcategories), psychosocial support (three subcategories), discussing diagnosis and support (three subcategories), and financial difficulties (one subcategory). Patient-caregivers reported importance in most end-of-life topics. Future research and intervention development should include topics related to psychosocial support, daily activities, discussing diagnosis and support, and financial difficulties.

Suggested Citation

  • Lianel Rosario-Ramos & Keishliany Suarez & Cristina Peña-Vargas & Yoamy Toro-Morales & Rosario Costas-Muñiz & Eida Castro & Stephanie Torres & Normarie Torres-Blasco, 2022. "Important End-of-Life Topics among Latino Patients and Caregivers Coping with Advanced Cancer," IJERPH, MDPI, vol. 19(15), pages 1-9, July.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:15:p:8967-:d:869845
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/19/15/8967/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/19/15/8967/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Sobo, Elisa J. & Kurtin, Paul, 2003. "Variation in physicians' definitions of the competent parent and other barriers to guideline adherence: the case of pediatric minor head injury management," Social Science & Medicine, Elsevier, vol. 56(12), pages 2479-2491, June.
    2. Robert W. Schrauf & Julia Sanchez, 2008. "Using Freelisting to Identify, Assess, and Characterize Age Differences in Shared Cultural Domains," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 63(6), pages 385-393.
    3. David R. Williams & Lisa A. Cooper, 2019. "Reducing Racial Inequities in Health: Using What We Already Know to Take Action," IJERPH, MDPI, vol. 16(4), pages 1-26, February.
    4. Frances K. Barg & Rebecca Huss-Ashmore & Marsha N. Wittink & Genevra F. Murray & Hillary R. Bogner & Joseph J. Gallo, 2006. "A Mixed-Methods Approach to Understanding Loneliness and Depression in Older Adults," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 61(6), pages 329-339.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Lianel Rosario-Ramos & Cristina Peña-Vargas & Normarie Torres-Blasco, 2023. "Acceptance of Caregiver–Patient Support to Latinx Coping with Advanced Cancer (CASA) Intervention: A Caregiver Case Study," IJERPH, MDPI, vol. 20(6), pages 1-10, March.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Keddem, Shimrit & Barg, Frances K. & Glanz, Karen & Jackson, Tara & Green, Sarah & George, Maureen, 2015. "Mapping the urban asthma experience: Using qualitative GIS to understand contextual factors affecting asthma control," Social Science & Medicine, Elsevier, vol. 140(C), pages 9-17.
    2. Mary Ellen Stone & Jielu Lin & Dale Dannefer & Jessica A. Kelley-Moore, 2017. "The Continued Eclipse of Heterogeneity in Gerontological Research," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 72(1), pages 162-167.
    3. Christopher Chauncey Watson & Leo Wilton & Jonathan Paul Lucas & Lawrence Bryant & Gregory D. Victorianne & Kerry Aradhya & Sheldon D. Fields & Darrell P. Wheeler & on behalf of the HPTN Black Caucus, 2020. "Development of a Black Caucus within the HIV Prevention Trials Network (HPTN): Representing the Perspectives of Black Men Who Have Sex with Men (MSM)," IJERPH, MDPI, vol. 17(3), pages 1-16, February.
    4. Glasgow, LaShawn & Clayton, Megan & Honeycutt, Amanda & Bayer, Erin M. & Plescia, Marcus & Holtgrave, Peter L. & Hacker, Karen, 2023. "Key insights on multisector community partnerships from real-world efforts to address social determinants of health," Evaluation and Program Planning, Elsevier, vol. 99(C).
    5. Matthew Jay Lyons & Senaida Fernandez Poole & Ross C. Brownson & Rodney Lyn, 2022. "Place Is Power: Investing in Communities as a Systemic Leverage Point to Reduce Breast Cancer Disparities by Race," IJERPH, MDPI, vol. 19(2), pages 1-13, January.
    6. Shelley White-Means & Darrell J. Gaskin & Ahmad Reshad Osmani, 2019. "Intervention and Public Policy Pathways to Achieve Health Care Equity," IJERPH, MDPI, vol. 16(14), pages 1-11, July.
    7. Hyegyeong Son & Heeran J. Cho & Sunghwan Cho & Juhyun Ryu & Sunghee Kim, 2022. "The Moderating Effect of Social Support between Loneliness and Depression: Differences between the Young-Old and the Old-Old," IJERPH, MDPI, vol. 19(4), pages 1-10, February.
    8. Mette Tøien & Morten Heggelund & Lisbeth Fagerström, 2014. "How Do Older Persons Understand the Purpose and Relevance of Preventive Home Visits? A Study of Experiences after a First Visit," Nursing Research and Practice, Hindawi, vol. 2014, pages 1-8, March.
    9. Lee Greenblatt-Kimron & Miri Kestler-Peleg & Ahuva Even-Zohar & Osnat Lavenda, 2021. "Death Anxiety and Loneliness among Older Adults: Role of Parental Self-Efficacy," IJERPH, MDPI, vol. 18(18), pages 1-11, September.
    10. Deborah J. Bowen & Senaida Fernandez Poole & Mary White & Rodney Lyn & Debra A. Flores & Helen G. Haile & David R. Williams, 2021. "The Role of Stress in Breast Cancer Incidence: Risk Factors, Interventions, and Directions for the Future," IJERPH, MDPI, vol. 18(4), pages 1-15, February.
    11. Raj, Anita & Chatterji, Sangeeta & Johns, Nicole E. & Yore, Jennifer & Dey, Arnab K. & Williams, David R., 2023. "The associations of everyday and major discrimination exposure with violence and poor mental health outcomes during the COVID-19 pandemic," Social Science & Medicine, Elsevier, vol. 318(C).
    12. Gemma Crawford & Elizabeth Connor & Kahlia McCausland & Karina Reeves & Krysten Blackford, 2022. "Public Health Interventions to Address Housing and Mental Health amongst Migrants from Culturally and Linguistically Diverse Backgrounds Living in High-Income Countries: A Scoping Review," IJERPH, MDPI, vol. 19(24), pages 1-22, December.
    13. Neighbors, Harold W. & Mattingly, Delvon T. & Johnson, Janay & Morse, Kayla, 2023. "The contribution of research to racial health equity? Blame and responsibility in navigating the status quo of anti-black systemic racism," Social Science & Medicine, Elsevier, vol. 316(C).
    14. Jd Carpentieri & Jane Elliott & Caroline Brett & Ian Deary, 2016. "Adding Narratives to Numbers in a Mixed Methods Study of Successful Ageing: The 6-Day Sample of the Scottish Mental Survey 1947," Sociological Research Online, , vol. 21(2), pages 67-92, May.
    15. Louise Mansfield & Christina Victor & Catherine Meads & Norma Daykin & Alan Tomlinson & Jack Lane & Karen Gray & Alex Golding, 2021. "A Conceptual Review of Loneliness in Adults: Qualitative Evidence Synthesis," IJERPH, MDPI, vol. 18(21), pages 1-19, November.
    16. Rosalina Mills & Keith J. Zullig & Laurie A. Theeke & Laura R. Lander & Gerry R. Hobbs & Johnathan Herczyk & Stephen M. Davis, 2022. "Assessing Loneliness among Adults Receiving Outpatient Treatment with Medication for Opioid Use Disorder (MOUD)," IJERPH, MDPI, vol. 19(20), pages 1-12, October.
    17. Gausman, Jewel & Lloyd, Danielle & Kallon, Thomas & Subramanian, S.V. & Langer, Ana & Austin, S. Bryn, 2019. "Clustered risk: An ecological understanding of sexual activity among adolescent boys and girls in two urban slums in Monrovia, Liberia," Social Science & Medicine, Elsevier, vol. 224(C), pages 106-115.
    18. Piotr Bialowolski & Jing Jian Xiao & Dorota Weziak-Bialowolska, 2024. "Do All Savings Matter Equally? Saving Types and Emotional Well-Being Among Older Adults: Evidence from Panel Data," Journal of Family and Economic Issues, Springer, vol. 45(1), pages 88-105, March.
    19. Singh, Namrita S. & Bass, Judith & Sumbadze, Nana & Rebok, George & Perrin, Paul & Paichadze, Nino & Robinson, W. Courtland, 2018. "Identifying mental health problems and Idioms of distress among older adult internally displaced persons in Georgia," Social Science & Medicine, Elsevier, vol. 211(C), pages 39-47.
    20. Rochelle Davidson Mhonde & Breonna Riddick & Aayushi Hingle & Cameron Shaw & Danielle Rudes & Harold Pollack & John Schneider & Xiaoquan Zhao & Faye S. Taxman, 2022. "“I Just Don’t Know What to Believe”: Sensemaking during the COVID-19 Pandemic among Criminal Legal Involved Communities," IJERPH, MDPI, vol. 19(22), pages 1-17, November.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:19:y:2022:i:15:p:8967-:d:869845. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.