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Important End-of-Life Topics among Latino Patients and Caregivers Coping with Advanced Cancer

Author

Listed:
  • Lianel Rosario-Ramos

    (School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico)

  • Keishliany Suarez

    (School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico)

  • Cristina Peña-Vargas

    (Ponce’s Research Institute, Ponce Health Sciences University, Ponce 00716, Puerto Rico)

  • Yoamy Toro-Morales

    (School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico)

  • Rosario Costas-Muñiz

    (Memorial Sloan-Kettering Cancer Center, Department of Psychiatry & Behavioral Sciences, New York, NY 10065, USA)

  • Eida Castro

    (School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico
    Ponce’s Research Institute, Ponce Health Sciences University, Ponce 00716, Puerto Rico)

  • Stephanie Torres

    (School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico)

  • Normarie Torres-Blasco

    (School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico
    Ponce’s Research Institute, Ponce Health Sciences University, Ponce 00716, Puerto Rico)

Abstract

There is a known end-of-life related disparity among Latino individuals, and there is a need to develop culturally sensitive interventions to help patients and caregivers cope with advanced cancer. Latino patients and caregivers coping with advanced cancer were asked to list important end-of-life topics to culturally inform a psychosocial intervention adaptation process. A qualitative study was conducted, and semi-structured interviews were performed, audio-recorded, and transcribed. Recordings and transcriptions were reviewed and analyzed using thematic content coding. The semi-structured interview described and demonstrated intervention components and elicited feedback about each. Free listing method was used to assess important topics among Latino advanced cancer patients ( n = 14; stage III and IV) and caregivers. Patients and caregivers were given a list of 15 topics and asked which topics they deemed important to integrate into the intervention. Overall, more than half of the participants considered it important to include 13 of the 15 topics related to daily activities (eight subcategories), psychosocial support (three subcategories), discussing diagnosis and support (three subcategories), and financial difficulties (one subcategory). Patient-caregivers reported importance in most end-of-life topics. Future research and intervention development should include topics related to psychosocial support, daily activities, discussing diagnosis and support, and financial difficulties.

Suggested Citation

  • Lianel Rosario-Ramos & Keishliany Suarez & Cristina Peña-Vargas & Yoamy Toro-Morales & Rosario Costas-Muñiz & Eida Castro & Stephanie Torres & Normarie Torres-Blasco, 2022. "Important End-of-Life Topics among Latino Patients and Caregivers Coping with Advanced Cancer," IJERPH, MDPI, vol. 19(15), pages 1-9, July.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:15:p:8967-:d:869845
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    References listed on IDEAS

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    1. Lianel Rosario-Ramos & Cristina Peña-Vargas & Normarie Torres-Blasco, 2023. "Acceptance of Caregiver–Patient Support to Latinx Coping with Advanced Cancer (CASA) Intervention: A Caregiver Case Study," IJERPH, MDPI, vol. 20(6), pages 1-10, March.

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