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Validation of PARADISE 24 and Development of PARADISE-EDEN 36 in Patients with Dementia

Author

Listed:
  • Francesco Talarico

    (Fondazione ANASTE-Humanitas via dei Gracchi, 00192 Roma, Italy)

  • Carolina Fellinghauer

    (Data Fittery GmbH, 4665 Oftringen, Switzerland)

  • Giuseppe Andrea De Biase

    (Fondazione ANASTE-Humanitas via dei Gracchi, 00192 Roma, Italy)

  • Pietro Gareri

    (Center for Cognitive Disorders and Dementia (CDCD), Catanzaro Lido, ASP Catanzaro, 88100 Catanzaro, Italy)

  • Sebastiano Capurso

    (RSA Bellosguardo, ANASTE Lazio, 00053 Civitavecchia, Italy)

  • Paolo Moneti

    (RSA Villa Gisella, ANASTE Toscana, 50100 Firenze, Italy)

  • Angela Caruso

    (RSA La Quiete, ANASTE Calabria, 87040 Castiglione Cosentino, Italy)

  • Valentina Chiatante

    (Casa Protetta Villa Azzurra, ANASTE Calabria, 87070 Roseto Capo Spulico, Italy)

  • Emanuela Gentile

    (Casa Protetta Madonna del Rosario, ANASTE Calabria, 88046 Lamezia Terme, Italy)

  • Monica Malerba

    (Centro Residenziale e di Riabilitazione San Domenico, ANASTE Calabria, 88046 Lamezia Terme, Italy)

  • Laura Marsico

    (RSA La Quiete, ANASTE Calabria, 87040 Castiglione Cosentino, Italy)

  • Maria Mauro

    (RSA Casa Amica, ANASTE Calabria, 88050 Fossato Serralta, Italy)

  • Maria Magro

    (RSA Casa Amica, ANASTE Calabria, 88050 Fossato Serralta, Italy)

  • Andrea Melendugno

    (O.P.S.A. Opera Provvidenza Sant’Antonio, C.S. Casa Madre Teresa di Calcutta, 35030 Sarmeola, Italy)

  • Fabio Pirrotta

    (Fondazione Betania Onlus, 88100 Catanzaro, Italy)

  • Luana Putrino

    (Centro Residenziale e di Riabilitazione San Domenico, ANASTE Calabria, 88046 Lamezia Terme, Italy)

  • Carla Putrino

    (Centro Residenziale e di Riabilitazione San Domenico, ANASTE Calabria, 88046 Lamezia Terme, Italy)

  • Anna Propati

    (Casa Protetta Villa Azzurra, ANASTE Calabria, 87070 Roseto Capo Spulico, Italy)

  • Vincenzo Rotondaro

    (Casa Protetta Villa Azzurra, ANASTE Calabria, 87070 Roseto Capo Spulico, Italy)

  • Fausto Spadea

    (RSA Casa Amica, ANASTE Calabria, 88050 Fossato Serralta, Italy)

  • Angela Villella

    (Casa Protetta Madonna del Rosario, ANASTE Calabria, 88046 Lamezia Terme, Italy)

  • Alba Malara

    (Fondazione ANASTE-Humanitas via dei Gracchi, 00192 Roma, Italy
    RSA La Quiete, ANASTE Calabria, 87040 Castiglione Cosentino, Italy
    Casa Protetta Villa Azzurra, ANASTE Calabria, 87070 Roseto Capo Spulico, Italy
    Casa Protetta Madonna del Rosario, ANASTE Calabria, 88046 Lamezia Terme, Italy)

Abstract

Dementia was one of the conditions focused on in an EU (European Union) project called “PARADISE” (Psychosocial fActors Relevant to brAin DISorders in Europe) that later produced a measure called PARADISE 24, developed within the biopsychosocial model proposed in the International Classification of Functioning Disability and Health (ICF). The aims of this study are to validate PARADISE 24 on a wider sample of patients with mild to moderate dementia to expand PARADISE 24 by defining a more specific scale for dementia, by adding 18 questions specifically selected for dementia, which eventually should be reduced to 12. We enrolled 123 persons with dementia, recruited between July 2017 and July 2019 in home care and long-term care facilities, in Italy, and 80 participants were recruited in Warsaw between January and July 2012 as part of a previous cross-sectional study. The interviews with the patient and/or family were conducted by health professionals alone or as a team by using the Paradise data collection protocol. The psychometric analysis with the Rasch analysis has shown that PARADISE 24 and the selection of 18 additional condition-specific items can be expected to have good measurement properties to assess the functional state in persons with dementia.

Suggested Citation

  • Francesco Talarico & Carolina Fellinghauer & Giuseppe Andrea De Biase & Pietro Gareri & Sebastiano Capurso & Paolo Moneti & Angela Caruso & Valentina Chiatante & Emanuela Gentile & Monica Malerba & La, 2022. "Validation of PARADISE 24 and Development of PARADISE-EDEN 36 in Patients with Dementia," IJERPH, MDPI, vol. 19(11), pages 1-21, June.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:11:p:6949-:d:832655
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    References listed on IDEAS

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    1. Geoff Masters, 1982. "A rasch model for partial credit scoring," Psychometrika, Springer;The Psychometric Society, vol. 47(2), pages 149-174, June.
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