The Role of Parent/Caregiver with Children Affected by Rare Diseases: Navigating between Love and Fear
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- Megan Thornton & Shirley S. Travis, 2003. "Analysis of the Reliability of the Modified Caregiver Strain Index," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 58(2), pages 127-132.
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Keywords
caregiver; parent; rare disease; chronic disease; qualitative research; role experience;All these keywords.
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