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A Nurse-Led Education Program for Pneumoconiosis Caregivers at the Community Level

Author

Listed:
  • Cheung Kin

    (School of Nursing, The Hong Kong Polytechnic University, Yuk Choi Road, Hung Hom, Kowloon, Hong Kong, China)

  • Chun Yuk Jason Tsang

    (Pneumoconiosis Mutual Aid Fund, Sham Shui Po, Kowloon, Hong Kong, China)

  • Lillian Weiwei Zhang

    (School of Nursing, The Hong Kong Polytechnic University, Yuk Choi Road, Hung Hom, Kowloon, Hong Kong, China)

  • Sandy Kit Ying Chan

    (Hong Kong Buddhist Hospital, Hong Kong, China
    Retired Nurse, General Manager (Nursing).)

Abstract

Pneumoconiosis is an irreversible chronic disease. With functional limitations and an inability to work, pneumoconiosis patients require support from family caregivers. However, the needs of pneumoconiosis caregivers have been neglected. This study aimed to evaluate the effectiveness of a nurse-led education program, which involved four weekly 90-min workshops led by an experienced nurse and guided by Orem’s self-care deficit theory. A single-group, repeated-measure study design was adopted. Caregivers’ mental health (Hospital Anxiety and Depression Scale, HADS, four single items for stress, worriedness, tiredness, and insufficient support), caregiving burdens (caregiving burden scale, CBS), and unmet direct support and enabling needs (Carer Support Needs Assessment Tool, CSNAT) were measured at the baseline (T0), immediately after (T1), and one month after intervention (T2); 49, 41, and 28 female participants completed the T0, T1, and T2 measurements. Mean age was 65.9 years old (SD 10.08) with a range between 37 and 85 years old. The program improved the caregivers’ mental wellbeing, and reduced their caregiving burdens and their unmet support and enabling needs, both immediately (T1) and one-month after the intervention (T2). In particular, the intervention improved the caregivers’ mental wellbeing significantly, specifically depression symptoms, stress, and tiredness immediately after the intervention; and reduced most of their unmet support needs and unmet enabling needs one-month after the intervention. This was the first nurse-led program for pneumoconiosis caregivers and should serve as a foundation for further studies to test the program with robust designs.

Suggested Citation

  • Cheung Kin & Chun Yuk Jason Tsang & Lillian Weiwei Zhang & Sandy Kit Ying Chan, 2021. "A Nurse-Led Education Program for Pneumoconiosis Caregivers at the Community Level," IJERPH, MDPI, vol. 18(3), pages 1-11, January.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:3:p:1092-:d:487479
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    References listed on IDEAS

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    1. Ekhlas Al‐Gamal & Janelle Yorke, 2014. "Perceived breathlessness and psychological distress among patients with chronic obstructive pulmonary disease and their spouses," Nursing & Health Sciences, John Wiley & Sons, vol. 16(1), pages 103-111, March.
    2. Francisco José Amo-Setién & Rebeca Abajas-Bustillo & Blanca Torres-Manrique & Roberto Martín-Melón & Carmen Sarabia-Cobo & Jesús Molina-Mula & Carmen Ortego-Mate, 2019. "Characteristics of nursing interventions that improve the quality of life of people with chronic diseases. A systematic review with meta-analysis," PLOS ONE, Public Library of Science, vol. 14(6), pages 1-18, June.
    3. Bing Han & Hongbo Liu & Guojiang Zhai & Qun Wang & Jie Liang & Mengcang Zhang & Kai Cui & Fuhai Shen & Hongbo Yi & Yuting Li & Yuhan Zhai & Yang Sheng & Jie Chen, 2016. "Estimates and Predictions of Coal Workers’ Pneumoconiosis Cases among Redeployed Coal Workers of the Fuxin Mining Industry Group in China: A Historical Cohort Study," PLOS ONE, Public Library of Science, vol. 11(2), pages 1-10, February.
    4. Linda Ora & Judy Mannix & Lucy Morgan & Lesley Wilkes, 2019. "Nurse‐led integration of palliative care for chronic obstructive pulmonary disease: An integrative literature review," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(21-22), pages 3725-3733, November.
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    Cited by:

    1. Bernard Kipkurui Yegon & Dr. Esther N. Kiaritha & Dr. Shikuku M. Mulambula, 2023. "Relationship between Teachers’ Utilization of Bloom’s Cognitive Taxonomy in Teaching and Students’ Academic Performance in Public Secondary Schools in Nandi County, Kenya," International Journal of Research and Innovation in Social Science, International Journal of Research and Innovation in Social Science (IJRISS), vol. 7(1), pages 1099-1106, January.

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