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Pilot Study to Develop and Test Palliative Care Quality Indicators for Nursing Homes

Author

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  • Charlèss Dupont

    (VUB-UGhent End-of-life Care Research Group, Vrije Universiteit Brussel (VUB), 1090 Brussel, Belgium
    Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel (VUB), 1090 Brussel, Belgium)

  • Robrecht De Schreye

    (VUB-UGhent End-of-life Care Research Group, Vrije Universiteit Brussel (VUB), 1090 Brussel, Belgium)

  • Joachim Cohen

    (VUB-UGhent End-of-life Care Research Group, Vrije Universiteit Brussel (VUB), 1090 Brussel, Belgium
    Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel (VUB), 1090 Brussel, Belgium)

  • Mark De Ridder

    (Department of Radiotherapy, University Hospital Brussels, 1090 Brussel, Belgium)

  • Lieve Van den Block

    (VUB-UGhent End-of-life Care Research Group, Vrije Universiteit Brussel (VUB), 1090 Brussel, Belgium
    Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel (VUB), 1090 Brussel, Belgium)

  • Luc Deliens

    (VUB-UGhent End-of-life Care Research Group, Vrije Universiteit Brussel (VUB), 1090 Brussel, Belgium
    Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel (VUB), 1090 Brussel, Belgium
    Department of Public Health and Primary Care, Ghent University, 9000 Ghent, Belgium)

  • Kathleen Leemans

    (VUB-UGhent End-of-life Care Research Group, Vrije Universiteit Brussel (VUB), 1090 Brussel, Belgium
    Department of Radiotherapy, University Hospital Brussels, 1090 Brussel, Belgium)

Abstract

An increasingly frail population in nursing homes accentuates the need for high quality care at the end of life and better access to palliative care in this context. Implementation of palliative care and its outcomes can be monitored by using quality indicators. Therefore, we developed a quality indicator set for palliative care in nursing homes and a tailored measurement procedure while using a mixed-methods design. We developed the instrument in three phases: (1) literature search, (2) interviews with experts, and (3) indicator and measurement selection by expert consensus (RAND/UCLA). Second, we pilot tested and evaluated the instrument in nine nursing homes in Flanders, Belgium. After identifying 26 indicators in the literature and expert interviews, 19 of them were selected through expert consensus. Setting-specific themes were advance care planning, autonomy, and communication with family. The quantitative and qualitative analyses showed that the indicators were measurable, had good preliminary face validity and discriminative power, and were considered to be useful in terms of quality monitoring according to the caregivers. The quality indicators can be used in a large implementation study and process evaluation in order to achieve continuous monitoring of the access to palliative care for all of the residents in nursing homes.

Suggested Citation

  • Charlèss Dupont & Robrecht De Schreye & Joachim Cohen & Mark De Ridder & Lieve Van den Block & Luc Deliens & Kathleen Leemans, 2021. "Pilot Study to Develop and Test Palliative Care Quality Indicators for Nursing Homes," IJERPH, MDPI, vol. 18(2), pages 1-15, January.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:2:p:829-:d:483146
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    References listed on IDEAS

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    1. Frances Bunn & Claire Goodman & Kirsten Corazzini & Rachel Sharpe & Melanie Handley & Jennifer Lynch & Julienne Meyer & Tom Dening & Adam L Gordon, 2020. "Setting Priorities to Inform Assessment of Care Homes’ Readiness to Participate in Healthcare Innovation: A Systematic Mapping Review and Consensus Process," IJERPH, MDPI, vol. 17(3), pages 1-15, February.
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    Cited by:

    1. Reena Devi & Adam Gordon & Tom Dening, 2022. "Enhancing the Quality of Care in Long-Term Care Settings," IJERPH, MDPI, vol. 19(3), pages 1-3, January.

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