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Development of a Model Care Pathway for Myasthenia Gravis

Author

Listed:
  • Anil babu Payedimarri

    (Department of Translational Medicine (DIMET), Università del Piemonte Orientale, 28100 Novara, Italy
    European Pathway Association, 3000 Leuven, Belgium)

  • Matteo Ratti

    (Department of Translational Medicine (DIMET), Università del Piemonte Orientale, 28100 Novara, Italy
    European Pathway Association, 3000 Leuven, Belgium)

  • Riccardo Rescinito

    (Department of Translational Medicine (DIMET), Università del Piemonte Orientale, 28100 Novara, Italy
    European Pathway Association, 3000 Leuven, Belgium)

  • Alessandra Vasile

    (Department of Translational Medicine (DIMET), Università del Piemonte Orientale, 28100 Novara, Italy
    European Pathway Association, 3000 Leuven, Belgium)

  • Deborah Seys

    (European Pathway Association, 3000 Leuven, Belgium
    Department of Public Health and Primary Care, Leuven Institute for Healthcare Policy, KU Leuven, 3000 Leuven, Belgium)

  • Hervé Dumas

    (UCB Pharma, 1630 Bulle, Switzerland)

  • Kris Vanhaecht

    (European Pathway Association, 3000 Leuven, Belgium
    Department of Public Health and Primary Care, Leuven Institute for Healthcare Policy, KU Leuven, 3000 Leuven, Belgium
    Department of Quality Management, University Hospitals Leuven, University of Leuven, 3000 Leuven, Belgium)

  • Massimiliano Panella

    (Department of Translational Medicine (DIMET), Università del Piemonte Orientale, 28100 Novara, Italy
    European Pathway Association, 3000 Leuven, Belgium)

Abstract

Myasthenia Gravis (MG) is a chronic, life-lasting condition that requires high coordination among different professionals and disciplines. The diagnosis of MG is often delayed and sometimes misdiagnosed. The goal of the care pathway (CP) is to add value to healthcare reducing unnecessary variations. The quality of the care received by patients affected with MG could benefit from the use of CP. We conducted a study aimed to define an inclusive, comprehensive, and multidisciplinary CP for the diagnosis, treatment, and care of MG. The development of the model CP, key interventions, and process indicators is based on the literature review and 85 international MG experts were involved in their evaluation, expressing a judgment of relevance through the Delphi study. 60 activities are included in the model CP and evaluated by the MG experts were valid and feasible. The 60 activities were then translated into 14 key interventions and 24 process indicators. We believe that the developed model CP will help for MG patients to have a timely diagnosis and high-quality, accessible, and cost-effective treatments and care. We also believe that the development of model CPs for other rare diseases is feasible and could aid in the integration of evidence-based knowledge into clinical practice.

Suggested Citation

  • Anil babu Payedimarri & Matteo Ratti & Riccardo Rescinito & Alessandra Vasile & Deborah Seys & Hervé Dumas & Kris Vanhaecht & Massimiliano Panella, 2021. "Development of a Model Care Pathway for Myasthenia Gravis," IJERPH, MDPI, vol. 18(21), pages 1-14, November.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:21:p:11591-:d:672075
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    References listed on IDEAS

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    1. Erik Landfeldt & Oksana Pogoryelova & Thomas Sejersen & Niklas Zethraeus & Ari Breiner & Hanns Lochmüller, 2020. "Economic Costs of Myasthenia Gravis: A Systematic Review," PharmacoEconomics, Springer, vol. 38(7), pages 715-728, July.
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