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Parents’ Perceptions of the Value of Children’s Participation in Pediatric Rehabilitation Services: A Phenomenographic Study

Author

Listed:
  • Lisa Kronsell

    (Department of Health and Care, School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden)

  • Petra Svedberg

    (Department of Health and Care, School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden)

  • Jens Nygren

    (Department of Health and Care, School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden)

  • Ingrid Larsson

    (Department of Health and Care, School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden)

Abstract

Ensuring that children have opportunities to be involved in decision-making regarding their own care is associated with quality improvement in pediatric rehabilitation. The aim of the study was to explore parents’ perceptions of the value of children’s participation in pediatric rehabilitation services. Semi-structured interviews were conducted with 17 parents of children with disabilities who visited pediatric rehabilitation services. A phenomenographic analysis method was used. Three categories developed from the analysis describing how participation generated value in terms of empowerment, self-awareness, and independence. The outcome space describes a hierarchical relationship between the categories and their influence on each other. Independence achieved through participation was a core aspect and is at the highest level in the hierarchy since it includes and depends on the outcomes from both empowerment and self-awareness. Parents’ perceptions of the value of children’s participation in pediatric rehabilitation services include the possibility for the child to use their entire capacity through values created in terms of empowerment, self-awareness, and independence, in order to live the best life possible. Children with disabilities are diverse as a group, and further research to identify barriers and facilitators of participation is needed to adjust interventions within pediatric rehabilitation services to ensure that children with disabilities can be increasingly empowered, self-aware, and independent.

Suggested Citation

  • Lisa Kronsell & Petra Svedberg & Jens Nygren & Ingrid Larsson, 2021. "Parents’ Perceptions of the Value of Children’s Participation in Pediatric Rehabilitation Services: A Phenomenographic Study," IJERPH, MDPI, vol. 18(20), pages 1-16, October.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:20:p:10948-:d:659007
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    References listed on IDEAS

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    1. Erin Farmer & Nicole Papadopoulos & Chloe Emonson & Ian Fuelscher & Caterina Pesce & Jane McGillivray & Christian Hyde & Lisa Olive & Nicole Rinehart, 2020. "A Preliminary Investigation of the Relationship between Motivation for Physical Activity and Emotional and Behavioural Difficulties in Children Aged 8–12 Years: The Role of Autonomous Motivation," IJERPH, MDPI, vol. 17(15), pages 1-11, August.
    2. Britta Teleman & Elin Vinblad & Petra Svedberg & Jens M. Nygren & Ingrid Larsson, 2021. "Exploring Barriers to Participation in Pediatric Rehabilitation: Voices of Children and Young People with Disabilities, Parents, and Professionals," IJERPH, MDPI, vol. 18(19), pages 1-13, September.
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