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The Quality of Life of Children with Myelomeningocele: A Cross-Sectional Preliminary Study

Author

Listed:
  • Anna Rozensztrauch

    (Department of Pediatrics, Division of Neonatology, Wroclaw Medical University, 50-367 Wrocław, Poland)

  • Magdalena Iwańska

    (Department of Pediatrics, Division of Neonatology, Wroclaw Medical University, 50-367 Wrocław, Poland)

  • Maciej Bagłaj

    (Department of Pediatrics, Division of Propaedeutic of Pediatrics and Rare Disorders, Wroclaw Medical University, 50-367 Wrocław, Poland)

Abstract

Objectives: To investigate the relationship between the defects and symptoms caused by myelomeningocele (MMC) and quality of life. Design: A cross-sectional questionnaire survey. Methods: The subjects were 52 parents of children with MMC. Structured questionnaires were used: the Pediatric Quality of Life Inventory 4.0 Generic Core Scales (PedsQL TM 4.0) and a Study-Specific Questionnaire (SSQ). Results: The overall PedsQL TM 4.0 score was 56.4 (SD ± 14.7). A strong, significant negative correlation was found between the children’s age and emotional functioning. Functioning in this area deteriorated with age by a mean of 1.5 points per year of age. Children with no hydrocephalus functioned significantly better than those with this defect in the physical, social, and school areas ( p < 0.05). Foot deformities significantly ( p = 0.033) adversely affected the children’s physical functioning. Living in a single-parent family had no statistically significant impact on functioning in any of the areas analyzed ( p > 0.05). Conclusion: Understanding the QoL of children with MMC and identifying its determinants may help in planning interventions to minimize the adverse impact of the illness.

Suggested Citation

  • Anna Rozensztrauch & Magdalena Iwańska & Maciej Bagłaj, 2021. "The Quality of Life of Children with Myelomeningocele: A Cross-Sectional Preliminary Study," IJERPH, MDPI, vol. 18(20), pages 1-10, October.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:20:p:10756-:d:655593
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    Cited by:

    1. Michaela Dellenmark-Blom & Marie Andersson & Konrad M. Szymanski & Charlotta Levén Andréasson & Magdalena Vu Minh Arnell & Sofia Sjöström & Kate Abrahamsson, 2024. "Linguistic, Content and Face Validity of the Swedish Version of a Quality-of-Life Assessment for Children, Teenagers and Adults with Spina Bifida," IJERPH, MDPI, vol. 21(5), pages 1-17, May.

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