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Making Lived-Experience Research Accessible: A Design Thinking Approach to Co-Creating Knowledge Translation Resources Based on Evidence

Author

Listed:
  • Katherine M. Boydell

    (Black Dog Institute, Sydney, NSW 2034, Australia
    School of Psychiatry, University of New South Wales, Sydney, NSW 2034, Australia)

  • Anne Honey

    (School of Health Sciences, University of Sydney, Sydney, NSW 2006, Australia)

  • Helen Glover

    (Enlightened Consultants, Redland Bay, QLD 4165, Australia)

  • Katherine Gill

    (Consumer-Led Research Network, University of Sydney, Sydney, NSW 2006, Australia)

  • Barbara Tooth

    (The Mental Health Services (TheMHS) Network, Balmain, NSW 2000, Australia)

  • Francesca Coniglio

    (Private Practitioner, Sydney, NSW 2000, Australia)

  • Monique Hines

    (School of Health Sciences, University of Sydney, Sydney, NSW 2006, Australia)

  • Leonie Dunn

    (South Eastern Sydney Local Health District, Sydney, NSW 2010, Australia)

  • Justin Newton Scanlan

    (School of Health Sciences, University of Sydney, Sydney, NSW 2006, Australia)

Abstract

Mental health lived-experience research illuminates the perspectives and experiences of people who live with mental illness. However, little is known about how useful people with lived experience of mental illness/distress might find lived-experience research, nor what the best formats are to bring it to their attention. This paper describes the STELLER study (Supporting the Translation into Everyday Life of Lived-Experience Research), which explores the translation of lived-experience research in the lives of people living with mental illness. Our aim was to use a design thinking approach to develop a range of user-friendly formats to disseminate lived-experience research. A staged design thinking approach was used to develop a translation strategy for lived-experience research. We explored empathy via consumer consultation to understand their perspectives on lived-experience research, refined the design aim, research questions and generated ideas with consumers and mental health professionals, identified the evidence based on lived experience-authored journal articles, worked with design students and peer workers to create a suite of resources and developed prototypes tailored to individual settings and clients. Participatory design thinking strategies are essential to identify the best ways to translate evidence-based lived-experience research via accessible, lay-friendly resources targeted to individuals impacted by mental illness. This study is the first to investigate the feasibility and usefulness of bringing the findings of lived-experience research to individuals impacted by mental illness/distress. It provides evidence about a potentially important source of information that can be used to facilitate their recovery.

Suggested Citation

  • Katherine M. Boydell & Anne Honey & Helen Glover & Katherine Gill & Barbara Tooth & Francesca Coniglio & Monique Hines & Leonie Dunn & Justin Newton Scanlan, 2021. "Making Lived-Experience Research Accessible: A Design Thinking Approach to Co-Creating Knowledge Translation Resources Based on Evidence," IJERPH, MDPI, vol. 18(17), pages 1-9, September.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:17:p:9250-:d:627439
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    Citations

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    Cited by:

    1. Shannon Li & Anne Honey & Francesca Coniglio & Peter Schaecken, 2022. "Mental Health Peer Worker Perspectives on Resources Developed from Lived Experience Research Findings: A Delphi Study," IJERPH, MDPI, vol. 19(7), pages 1-15, March.
    2. Min-Hua Chen & Shih-Ping Cheng & Leon Yufeng Wu, 2023. "Merging Design Thinking into Translational Research in a Biomedical Engineering Laboratory (DT-TRBEL) Course," Sustainability, MDPI, vol. 15(18), pages 1-13, September.

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