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Could Caregivers’ Stressful Care Experiences Be Related to Their Attitudes towards Advance Care Planning? A Cross-Sectional Descriptive Study

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  • Pei-Yu Tsai

    (Department of Family Medicine, Department of Hospice-Palliative Care, Changhua Christian Hospital, Changhua 50006, Taiwan
    Department of Hospice-Palliative Care, Changhua Christian Hospital, Changhua 50006, Taiwan)

  • Wen-Han Huang

    (Department of Hospice-Palliative Care, Changhua Christian Hospital, Changhua 50006, Taiwan)

  • Yu-Jun Chang

    (Big Data Center, Epidemiology and Biostatistics Center, Changhua Christian Hospital, Changhua 50006, Taiwan)

Abstract

Previous research has shown that care experiences influence the willingness for advance care planning (ACP). Family caregivers have increased contact with medical providers and procedures in the process of caring, and they have also witnessed the disability and suffering of patients. However, few studies have focused on family caregivers to understand their attitudes towards ACP. The aim of this cross-sectional study was to acknowledge family caregivers’ attitudes towards ACP and the related factors, especially care stress and experiences during the care process. We interviewed 291 family caregivers, and the demographics of the caregivers and care recipients, the clinical condition of care recipients, and the caregivers’ stress and care experiences were collected via anonymous questionnaires. Multiple logistic regression was performed to determine the factors associated with the attitudes towards ACP. We found that the caregiver having private health insurance ( p < 0.001) and a completed DNR ( p < 0.001) and the experience of recipients admitted to the ICU ( p = 0.019) are associated with caregiver’s positive attitudes towards ACP. The greater the stress of conflict within a family over care decisions, the more participants think that ACP is important ( p = 0.011). It is suggested that (1) in a family-centered culture, a public strategy for promoting ACP could be to emphasize the benefits of ACP in reducing family conflicts, and (2) when people make financial plans, they should also be provided with information about ACP to enable them to form a more integral plan for their future.

Suggested Citation

  • Pei-Yu Tsai & Wen-Han Huang & Yu-Jun Chang, 2021. "Could Caregivers’ Stressful Care Experiences Be Related to Their Attitudes towards Advance Care Planning? A Cross-Sectional Descriptive Study," IJERPH, MDPI, vol. 18(17), pages 1-12, August.
  • Handle: RePEc:gam:jijerp:v:18:y:2021:i:17:p:9038-:d:623200
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    References listed on IDEAS

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    1. Fu-Ming Chiang & Jyh-Gang Hsieh & Sheng-Yu Fan & Ying-Wei Wang & Shu-Chen Wang, 2020. "Does the Experience of Caring for a Severely Disabled Relative Impact Advance Care Planning? A Qualitative Study of Caregivers of Disabled Patients," IJERPH, MDPI, vol. 17(5), pages 1-11, March.
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