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Acceptability of a Mobile-Health Living Kidney Donor Advocacy Program for Black Wait-Listed Patients

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  • John C. Sieverdes

    (Department of Health and Human Performance, College of Charleston, Charleston, SC 29424, USA)

  • Lynne S. Nemeth

    (College of Nursing, Medical University of South Carolina, Charleston, SC 29424, USA)

  • Martina Mueller

    (College of Nursing, Medical University of South Carolina, Charleston, SC 29424, USA)

  • Vivik Rohan

    (College of Medicine, Medical University of South Carolina, Charleston, SC 29424, USA)

  • Prabhakar K. Baliga

    (College of Medicine, Medical University of South Carolina, Charleston, SC 29424, USA)

  • Frank Treiber

    (College of Nursing, Medical University of South Carolina, Charleston, SC 29424, USA
    College of Medicine, Medical University of South Carolina, Charleston, SC 29424, USA)

Abstract

Marked racial disparities exist in rates of living donor kidney transplantation (LDKT). The Living Organ Video Educated Donors (LOVED) program is a distance-based, mobile health program designed to help Black kidney transplant wait-list patients advocate for a living donor. This study reported on the acceptability outcomes to aid in future refinements. Participants were randomized to LOVED ( n = 24, mean age = 50.9 SD (9.2) years), male = 50%) and usual care groups ( n = 24 (mean age 47.9 SD (10.0), male 50%). Four LOVED groups completed an eight-week intervention that consisted of six online video education modules and eight group video chat sessions led by a Black navigator. Qualitative analysis from post-study focus groups resulted in six themes: (1) video chat sessions provided essential support and encouragement, (2) videos motivated and made participants more knowledgeable, (3) connectivity with tablets was acceptable in most areas, (4) material was culturally sensitive, (5) participation was overall a positive experience and (6) participants were more willing to ask for a kidney now. The video chat sessions were pertinent in participant satisfaction, though technology concerns limited program implementation. Results showed that the LOVED program was acceptable to engage minorities in health behavior changes for living donor advocacy but barriers exist that require future refinement.

Suggested Citation

  • John C. Sieverdes & Lynne S. Nemeth & Martina Mueller & Vivik Rohan & Prabhakar K. Baliga & Frank Treiber, 2021. "Acceptability of a Mobile-Health Living Kidney Donor Advocacy Program for Black Wait-Listed Patients," IJERPH, MDPI, vol. 18(16), pages 1-17, August.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:16:p:8239-:d:607936
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    1. Krieger, Nancy & Smith, Kevin & Naishadham, Deepa & Hartman, Cathy & Barbeau, Elizabeth M., 2005. "Experiences of discrimination: Validity and reliability of a self-report measure for population health research on racism and health," Social Science & Medicine, Elsevier, vol. 61(7), pages 1576-1596, October.
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