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ECOCAPTURE@HOME: Protocol for the Remote Assessment of Apathy and Its Everyday-Life Consequences

Author

Listed:
  • Valérie Godefroy

    (Sorbonne Université, Institut du Cerveau—Paris Brain Institute—ICM, Inserm, CNRS, AP-HP, Hôpital de la Pitié Salpêtrière, F-75013 Paris, France)

  • Richard Levy

    (Sorbonne Université, Institut du Cerveau—Paris Brain Institute—ICM, Inserm, CNRS, AP-HP, Hôpital de la Pitié Salpêtrière, F-75013 Paris, France
    Département de Neurologie, Institut de la Mémoire et de la Maladie d’Alzheimer (IM2A), AP-HP, Hôpital de la Pitié Salpêtrière, F-75013 Paris, France
    Unité de Neuropsychiatrie Comportementale, Département de Neurologie, AP-HP, Hôpital de la Pitié Salpêtrière, F-75013 Paris, France)

  • Arabella Bouzigues

    (Sorbonne Université, Institut du Cerveau—Paris Brain Institute—ICM, Inserm, CNRS, AP-HP, Hôpital de la Pitié Salpêtrière, F-75013 Paris, France)

  • Armelle Rametti-Lacroux

    (Sorbonne Université, Institut du Cerveau—Paris Brain Institute—ICM, Inserm, CNRS, AP-HP, Hôpital de la Pitié Salpêtrière, F-75013 Paris, France)

  • Raffaella Migliaccio

    (Sorbonne Université, Institut du Cerveau—Paris Brain Institute—ICM, Inserm, CNRS, AP-HP, Hôpital de la Pitié Salpêtrière, F-75013 Paris, France
    Département de Neurologie, Institut de la Mémoire et de la Maladie d’Alzheimer (IM2A), AP-HP, Hôpital de la Pitié Salpêtrière, F-75013 Paris, France)

  • Bénédicte Batrancourt

    (Sorbonne Université, Institut du Cerveau—Paris Brain Institute—ICM, Inserm, CNRS, AP-HP, Hôpital de la Pitié Salpêtrière, F-75013 Paris, France)

Abstract

Apathy, a common neuropsychiatric symptom associated with dementia, has a strong impact on patients’ and caregivers’ quality of life. However, it is still poorly understood and hard to define. The main objective of the ECOCAPTURE programme is to define a behavioural signature of apathy using an ecological approach. Within this program, ECOCAPTURE@HOME is an observational study which aims to validate a method based on new technologies for the remote monitoring of apathy in real life. For this study, we plan to recruit 60 couples: 20 patient-caregiver dyads in which patients suffer from behavioral variant Fronto-Temporal Dementia, 20 patient-caregiver dyads in which patients suffer from Alzheimer Disease and 20 healthy control couples. These dyads will be followed for 28 consecutive days via multi-sensor bracelets collecting passive data (acceleration, electrodermal activity, blood volume pulse). Active data will also be collected by questionnaires on a smartphone application. Using a pool of metrics extracted from these passive and active data, we will validate a measurement model for three behavioural markers of apathy (i.e., daytime activity, quality of sleep, and emotional arousal). The final purpose is to facilitate the follow-up and precise diagnosis of apathy, towards a personalised treatment of this condition within everyday life.

Suggested Citation

  • Valérie Godefroy & Richard Levy & Arabella Bouzigues & Armelle Rametti-Lacroux & Raffaella Migliaccio & Bénédicte Batrancourt, 2021. "ECOCAPTURE@HOME: Protocol for the Remote Assessment of Apathy and Its Everyday-Life Consequences," IJERPH, MDPI, vol. 18(15), pages 1-19, July.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:15:p:7824-:d:600494
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