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Enhance Access to Pulmonary Rehabilitation with a Structured and Personalized Home-Based Program— reabilitAR : Protocol for Real-World Setting

Author

Listed:
  • Sarah Bernard

    (Centre de Recherche, Institut Universitaire de Cardiologie et de Pneumologie de Québec, Université Laval, Québec, QC G1V 4G5, Canada
    These authors contributed equally to this work.)

  • Rui Vilarinho

    (Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal
    These authors contributed equally to this work.)

  • Inês Pinto

    (Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal)

  • Rosa Cantante

    (Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal)

  • Ricardo Coxo

    (Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal)

  • Rosa Fonseca

    (Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal)

  • Sagrario Mayoralas-Alises

    (Healthcare Management Department, Hospital Quirón Salud San José, 28002 Madrid, Spain)

  • Salvador Diaz-Lobato

    (Nippon Gases Healthcare, 28020 Madrid, Spain
    Service of Pneumology, Hospital Universitario Moncloa, 28008 Madrid, Spain)

  • João Carvalho

    (Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal
    Department of Pulmonology, Centro Hospitalar Universitário Lisboa Norte, Lisbon Academic Medical Center, 1649-028 Lisbon, Portugal)

  • Cátia Esteves

    (Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal)

  • Cátia Caneiras

    (Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal
    Microbiology Research Laboratory on Environmental Health (EnviHealthMicroLab), Institute of Environmental Health (ISAMB), Faculty of Medicine, University of Lisbon, 1649-028 Lisbon, Portugal
    Institute for Preventive Medicine and Public Health, Faculty of Medicine, University of Lisbon, 1649-028 Lisbon, Portugal)

Abstract

Home-based models represent one of the solutions to respond to the poor accessibility of pulmonary rehabilitation (PR) services in patients with chronic respiratory disease (CRD). The main goal of this protocol is to present the implementation of the first nationwide home-based PR program— reabilitAR —in Portugal and the strategies to assess its benefits in patients with CRD. The program consists of 2 phases: a 12-week intensive phase and a 40-week maintenance phase (total: 52 weeks, 1 year). The intervention in both phases is composed of presential home visits and phone-call follow ups, including exercise training and the self-management educational program Living Well with COPD. Dyspnea, impact of the disease, emotional status, and level of dyspnea during activities of daily living are used as patient-reported outcomes measures. A one-minute sit-to-stand test is used as a functional outcome, and the number of steps as a measure of physical activity. To ensure safety, fall risk and the cognitive function are assessed. Data are collected at baseline, at 12 weeks, at 26 weeks and at 52 weeks. This is the first nationwide protocol on enhancing access to PR, providing appropriate responses to CRD patients’ needs through a structured and personalized home-based program in Portugal.

Suggested Citation

  • Sarah Bernard & Rui Vilarinho & Inês Pinto & Rosa Cantante & Ricardo Coxo & Rosa Fonseca & Sagrario Mayoralas-Alises & Salvador Diaz-Lobato & João Carvalho & Cátia Esteves & Cátia Caneiras, 2021. "Enhance Access to Pulmonary Rehabilitation with a Structured and Personalized Home-Based Program— reabilitAR : Protocol for Real-World Setting," IJERPH, MDPI, vol. 18(11), pages 1-12, June.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:11:p:6132-:d:569919
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    References listed on IDEAS

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    1. Giap Van Vu & Giang Hai Ha & Cuong Tat Nguyen & Giang Thu Vu & Hai Quang Pham & Carl A. Latkin & Bach Xuan Tran & Roger C. M. Ho & Cyrus S. H. Ho, 2020. "Interventions to Improve the Quality of Life of Patients with Chronic Obstructive Pulmonary Disease: A Global Mapping During 1990–2018," IJERPH, MDPI, vol. 17(9), pages 1-14, April.
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    Cited by:

    1. Lorenzo Lippi & Francesco D’Abrosca & Arianna Folli & Alberto Dal Molin & Stefano Moalli & Antonio Maconi & Antonio Ammendolia & Alessandro de Sire & Marco Invernizzi, 2022. "Closing the Gap between Inpatient and Outpatient Settings: Integrating Pulmonary Rehabilitation and Technological Advances in the Comprehensive Management of Frail Patients," IJERPH, MDPI, vol. 19(15), pages 1-12, July.

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