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The Relationship between Affiliate Stigma in Parents of Children with Autism Spectrum Disorder and Their Children’s Activity Participation

Author

Listed:
  • Carmen K. M. Ng

    (Department of Rehabilitation Sciences, The Hong Kong Polytechnic University, Hung Hom, Kowloon, Hong Kong (SAR), China)

  • Stephen H. F. Lam

    (Department of Rehabilitation Sciences, The Hong Kong Polytechnic University, Hung Hom, Kowloon, Hong Kong (SAR), China)

  • Sally T. K. Tsang

    (Department of Rehabilitation Sciences, The Hong Kong Polytechnic University, Hung Hom, Kowloon, Hong Kong (SAR), China)

  • Cheong M. C. Yuen

    (Department of Rehabilitation Sciences, The Hong Kong Polytechnic University, Hung Hom, Kowloon, Hong Kong (SAR), China)

  • Chi-Wen Chien

    (Department of Rehabilitation Sciences, The Hong Kong Polytechnic University, Hung Hom, Kowloon, Hong Kong (SAR), China)

Abstract

Children with autism spectrum disorder (ASD) are reported to participate less in everyday activities, and their parents face stigma on account of having a child with ASD, which they often internalize as affiliate stigma. Studies have examined the impact of affiliate stigma on parents’ psychological well-being and social behaviors, but little is known about how affiliate stigma impacts their children’s activity participation. This study aimed to investigate the relationship between parents’ affiliate stigma and activity participation of their children with ASD. Sixty-three parents of children with ASD (aged 2–6 years) were recruited. They completed questionnaires, which captured affiliate stigma, their child’s participation (frequency and involvement) in home, preschool, and community activities, and demographic characteristics. Results indicated that these parents had a moderate level of affiliate stigma, which did not correlate with the frequency of their children’s participation in activities. However, the parents’ affiliate stigma was found to have negative impacts on their children’s involvement in overall community participation and participation in one particular activity at home. The findings highlight the importance of destigmatization of parents of children with ASD in order to promote their children’s participation in community activities.

Suggested Citation

  • Carmen K. M. Ng & Stephen H. F. Lam & Sally T. K. Tsang & Cheong M. C. Yuen & Chi-Wen Chien, 2020. "The Relationship between Affiliate Stigma in Parents of Children with Autism Spectrum Disorder and Their Children’s Activity Participation," IJERPH, MDPI, vol. 17(5), pages 1-13, March.
  • Handle: RePEc:gam:jijerp:v:17:y:2020:i:5:p:1799-:d:330709
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    Citations

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    Cited by:

    1. Chi-Wen Chien & Yuen Yi Cynthia Lai & Chung-Ying Lin & Fiona Graham, 2020. "Occupational Performance Coaching with Parents to Promote Community Participation and Quality of Life of Young Children with Developmental Disabilities: A Feasibility Evaluation in Hong Kong," IJERPH, MDPI, vol. 17(21), pages 1-26, October.
    2. Jenny Paananen & Camilla Lindholm & Melisa Stevanovic & Elina Weiste, 2020. "Tensions and Paradoxes of Stigma: Discussing Stigma in Mental Health Rehabilitation," IJERPH, MDPI, vol. 17(16), pages 1-18, August.
    3. Chung-Ying Lin & Hector W. H. Tsang, 2020. "Stigma, Health and Well-Being," IJERPH, MDPI, vol. 17(20), pages 1-12, October.
    4. Miira Niska & Melisa Stevanovic & Elina Weiste & Tommi Ostrovskij & Taina Valkeapää & Camilla Lindholm, 2021. "Self-Disclosure and Non-Communication: Stigma Management in Third-Sector Transitional Employment," IJERPH, MDPI, vol. 18(22), pages 1-14, November.

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