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Who Can Help Us on This Journey? African American Woman with Breast Cancer: Living in a City with Extreme Health Disparities

Author

Listed:
  • Shelley White-Means

    (College of Graduate Health Science, University of Tennessee Health Science Center, 910 Madison, Suite 317, Memphis, TN 38163, USA)

  • Jill Dapremont

    (Loewenberg College of Nursing, University of Memphis, 3567 Community Health Building, Memphis, TN 38152, USA)

  • Barbara D Davis

    (Department of Management, Fogelman College of Business and Economics, University of Memphis, Memphis, TN 38152, USA)

  • Tronlyn Thompson

    (Department of Biology, College of Arts and Sciences, Howard University, 2251 Sherman Avenue NW, Washington, DC 20001, USA)

Abstract

This qualitative descriptive research study looks at the services that community-based breast cancer support agencies provide to underserved and African American women who are at risk for or diagnosed with breast cancer in Memphis, Tennessee. We seek their understanding of breast cancer mortality disparities in Memphis. Data were collected using semi-structured in-depth focus groups with five breast cancer support agencies. Categories and patterns were established using thematic analysis and a deductive a priori template of codes. Thematic analysis is a method for identifying, analyzing, and reporting themes within the data. The main themes identified within support agencies for African American women with breast cancer who live in Memphis were barriers to the use of services, education, health system support, and emotional support. Numerous sub themes included cost of medications, support group supplemental programming, eligibility for mobile services, patient/provider communication, optimism about the future, and family advice. Procrastinating, seeking second options, fearfulness, insurance, childcare, and transportation were barriers to care. Community-based breast cancer support agencies play a critical role as connectors for women with breast cancer who live in medically underserved areas and must find their way within a fragmented medical care system.

Suggested Citation

  • Shelley White-Means & Jill Dapremont & Barbara D Davis & Tronlyn Thompson, 2020. "Who Can Help Us on This Journey? African American Woman with Breast Cancer: Living in a City with Extreme Health Disparities," IJERPH, MDPI, vol. 17(4), pages 1-12, February.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:4:p:1126-:d:319005
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    References listed on IDEAS

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    1. White-Means, Shelley I. & Osmani, Ahmad Reshad, 2019. "Job Market Prospects of Breast vs. Prostate Cancer Survivors in the US: A Double Hurdle Model of Ethnic Disparities," EconStor Open Access Articles and Book Chapters, ZBW - Leibniz Information Centre for Economics, vol. 40, pages 282-304.
    2. Richardson, L.C. & Royalty, J. & Howe, W. & Helsel, W. & Kammerer, W. & Benard, V.B., 2010. "Timeliness of breast cancer diagnosis and initiation of treatment in the national breast and cervical cancer early detection program, 1996-2005," American Journal of Public Health, American Public Health Association, vol. 100(9), pages 1769-1776.
    3. Kim, K. & Choi, J.S. & Choi, E. & Nieman, C.L. & Joo, J.H. & Lin, F.R. & Gitlin, L.N. & Han, H.-R., 2016. "Effects of community-based health worker interventions to improve chronic disease management and care among vulnerable populations: A systematic review," American Journal of Public Health, American Public Health Association, vol. 106(4), pages 3-28.
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    Cited by:

    1. Voicu, Bogdan & Fărcășanu, Dana & Mustață, Mirela & Deliu, Alexandra & Vișinescu, Iulia, 2023. "Using laws, common sense, and statistical approaches to design indicators for ‘medical desertification’. An application on the Romanian case," Social Science & Medicine, Elsevier, vol. 327(C).
    2. Leticia Sanchez & Nelida Fernandez & Angela P. Calle & Valentina Ladera & Ines Casado & Enrique Bayon & Isaias Garcia & Ana M. Sahagun, 2022. "Assessing the Expression of Emotions in Breast Cancer Survivors during the Time of Recovery: Perspective from Focus Groups," IJERPH, MDPI, vol. 19(15), pages 1-12, August.

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