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Knowledge and Myths about Palliative Care among the General Public and Health Care Professionals in Portugal

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  • Maria dos Anjos Dixe

    (School of Health Sciences of Polytechnic Institute of Leiria (IPLeiria), Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria Leiria, Portugal
    Centre for Innovative Care and Health Technology (ciTechCare), Rua de Santo André—66–68, Campus 5, Politécnico de Leiria, 2410-541 Leiria, Portugal)

  • Irene Dixe de Oliveira Santo

    (Centre for Innovative Care and Health Technology (ciTechCare), Rua de Santo André—66–68, Campus 5, Politécnico de Leiria, 2410-541 Leiria, Portugal
    Weiss Memorial Hospital, 4646 North Marine Drive, Chicago, IL 60640, USA)

  • Saudade Lopes

    (School of Health Sciences of Polytechnic Institute of Leiria (IPLeiria), Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria Leiria, Portugal
    Centre for Innovative Care and Health Technology (ciTechCare), Rua de Santo André—66–68, Campus 5, Politécnico de Leiria, 2410-541 Leiria, Portugal)

  • Helena Catarino

    (School of Health Sciences of Polytechnic Institute of Leiria (IPLeiria), Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria Leiria, Portugal
    Centre for Innovative Care and Health Technology (ciTechCare), Rua de Santo André—66–68, Campus 5, Politécnico de Leiria, 2410-541 Leiria, Portugal)

  • Susana Duarte

    (The Health Sciences Research Unit: Nursing, Nursing School of Coimbra (ESEnfC), 3046-851 Coimbra, Portugal)

  • Ana Querido

    (School of Health Sciences of Polytechnic Institute of Leiria (IPLeiria), Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria Leiria, Portugal
    Centre for Innovative Care and Health Technology (ciTechCare), Rua de Santo André—66–68, Campus 5, Politécnico de Leiria, 2410-541 Leiria, Portugal
    Center for Research in Health and Information Systems (CINTESIS), NursID, University of Porto, 4200-450 Porto, Portugal)

  • Carlos Laranjeira

    (School of Health Sciences of Polytechnic Institute of Leiria (IPLeiria), Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria Leiria, Portugal
    Centre for Innovative Care and Health Technology (ciTechCare), Rua de Santo André—66–68, Campus 5, Politécnico de Leiria, 2410-541 Leiria, Portugal
    Research in Education and Community Intervention (RECI I&D), Piaget Institute of Viseu, 3515-776 Viseu, Portugal)

Abstract

Background: International research has shown that healthcare professionals (HCPs) and nonhealthcare professionals (NHCPs) are unaware of the goals and purposes of palliative care. This study evaluates the knowledge of palliative care among a sample of Portuguese adults and correlates their level of knowledge with age, gender, profession, and experience of family member’s palliative care. Method: A cross-sectional online survey was carried out on a sample of 152 HCPs and 440 NHCPs who completed an anonymous questionnaire of sociodemographic, family, and professional data, and an instrument of 26 dichotomous (true or false) questions focusing on palliative care goals and purposes. Results: The 592 participants had a mean age of 31.3 ± 11.1 years, and most were female. Statistically significant differences between statements considered as correct by HCPs and NHCPs were found in 24 statements; HCPs had the highest percentage of correct answers. The terms most frequently associated with palliative care mentioned by NHCPs were chronic and progressive disease (n = 76), while HCPs mostly mentioned quality-of-life promotion (n = 29). Women, the elderly, and HCPs had a higher level of knowledge regarding palliative care ( p < 0.001). Conclusions : Results clearly show gaps in knowledge of palliative care, especially among NHCPs. An integrated approach is needed to inform and clarify the philosophy and goals of palliative care in different settings in order to improve knowledge.

Suggested Citation

  • Maria dos Anjos Dixe & Irene Dixe de Oliveira Santo & Saudade Lopes & Helena Catarino & Susana Duarte & Ana Querido & Carlos Laranjeira, 2020. "Knowledge and Myths about Palliative Care among the General Public and Health Care Professionals in Portugal," IJERPH, MDPI, vol. 17(13), pages 1-12, June.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:13:p:4630-:d:377110
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