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Understanding the Participation in Home, School, and Community Activities Reported by Children with Disabilities and Their Parents: A Pilot Study

Author

Listed:
  • Ya-Tzu Liao

    (Graduate Institute of Early Intervention, College of Medicine, Chang Gung University, 259 Wen-Hwa 1st Road, Kwei-Shan, Tao-Yuan City 333, Taiwan)

  • Ai-Wen Hwang

    (Graduate Institute of Early Intervention, College of Medicine, Chang Gung University, 259 Wen-Hwa 1st Road, Kwei-Shan, Tao-Yuan City 333, Taiwan
    The Department of Physical Medicine and Rehabilitation, Chang Gung Memorial Hospital, Linkou, 5 Fu-Xing St., Kwei-Shan, Tao-Yuan City 333, Taiwan)

  • Hua-Fang Liao

    (The School and Graduate Institute of Physical Therapy, College of Medicine, National Taiwan University, 17 Xuzhou Rd., Taipei City 100, Taiwan)

  • Mats Granlund

    (CHILD, Swedish Institute of Disability Research, Jönköping University, Gjuterigatan 5, 553 18 Jönköping, Sweden)

  • Lin-Ju Kang

    (Graduate Institute of Early Intervention, College of Medicine, Chang Gung University, 259 Wen-Hwa 1st Road, Kwei-Shan, Tao-Yuan City 333, Taiwan
    The Department of Physical Medicine and Rehabilitation, Chang Gung Memorial Hospital, Linkou, 5 Fu-Xing St., Kwei-Shan, Tao-Yuan City 333, Taiwan)

Abstract

Participation has significant impact on children’s health and well-being. Knowledge is limited on how children with disabilities perceive their participation and whether their perceptions differ from their parents. This pilot study aimed to explore whether self-reported frequency of participation and prioritized activities differ between children with disabilities and their parents. Thirty children with disabilities eligible for special education in elementary school and their parents were included. Each of them were interviewed with the Chinese version of Picture My Participation (PMP), separately, to identify the child’s participation frequency in 21 activities at home, school, and community, desire-to-change activities, and the level of involvement in these activities. The results indicated that children’s ratings of participation frequency were significantly lower than parents’ ratings in home activities but not in school and community activities, as analyzed by the Wilcoxon Signed Ranked test. Nineteen (63%) child–parent pairs had selected entirely different items as their desire-to-change activities. Children selected the activities that they were somewhat to very involved in; while parents selected the activities they thought their children were less involved in. Our findings suggest that children with disabilities had unique views on life and this should be supported in their health care and individualized education plans.

Suggested Citation

  • Ya-Tzu Liao & Ai-Wen Hwang & Hua-Fang Liao & Mats Granlund & Lin-Ju Kang, 2019. "Understanding the Participation in Home, School, and Community Activities Reported by Children with Disabilities and Their Parents: A Pilot Study," IJERPH, MDPI, vol. 16(12), pages 1-14, June.
    • Handle: RePEc:gam:jijerp:v:16:y:2019:i:12:p:2217-:d:242360
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    Citations

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    Cited by:

    1. Britta Teleman & Elin Vinblad & Petra Svedberg & Jens M. Nygren & Ingrid Larsson, 2021. "Exploring Barriers to Participation in Pediatric Rehabilitation: Voices of Children and Young People with Disabilities, Parents, and Professionals," IJERPH, MDPI, vol. 18(19), pages 1-13, September.
    2. Ai-Wen Hwang & Chia-Feng Yen & Hua-Fang Liao & Wen-Chou Chi & Tsan-Hon Liou & Ben-Sheng Chang & Ting-Fang Wu & Lin-Ju Kang & Shu-Jen Lu & Rune J. Simeonsson & Tze-Hsuan Wang & Gary Bedell, 2020. "Structural Validity of an ICF-Based Measure of Activity and Participation for Children in Taiwan’s Disability Eligibility Determination System," IJERPH, MDPI, vol. 17(17), pages 1-16, August.
    3. Cong Xia & Qi Jing & Gang Chen & Mei Sun & Jun Lu, 2022. "Association between Participation of Children with Disabilities and the Child, Family, and Environmental Factors in Shanghai, China: A Cross-Sectional Study," IJERPH, MDPI, vol. 20(1), pages 1-12, December.
    4. Anu Kinnunen & Annastiina Vesterinen & Anu Kippola-Pääkkönen & Maarit Karhula, 2023. "Partnership Working among Families, Therapists and Educationalists to Enhance Collaboration Enabling Participation of Children with Intellectual Disabilities," Disabilities, MDPI, vol. 3(3), pages 1-14, August.

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