"Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose
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- Regidor, Enrique, 2004. "The use of personal data from medical records and biological materials: ethical perspectives and the basis for legal restrictions in health research," Social Science & Medicine, Elsevier, vol. 59(9), pages 1975-1984, November.
- Lako, C. J., 1986. "Privacy protection and population-based health research," Social Science & Medicine, Elsevier, vol. 23(3), pages 293-295, January.
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Cited by:
- Teare, Harriet & Morrison, M. & Whitley, Edgar A. & Kaye, Jane, 2015. "Towards 'engagement 2.0': insights from a study of dynamic consent with biobank participants," LSE Research Online Documents on Economics 63278, London School of Economics and Political Science, LSE Library.
- Yann Joly & Gratien Dalpé & Derek So & Stanislav Birko, 2015. "Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking," PLOS ONE, Public Library of Science, vol. 10(7), pages 1-20, July.
- Noor A A Giesbertz & Annelien L Bredenoord & Johannes J M van Delden, 2012. "Inclusion of Residual Tissue in Biobanks: Opt-In or Opt-Out?," PLOS Biology, Public Library of Science, vol. 10(8), pages 1-6, August.
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Keywords
Informed consent Biobanks Ethics Research Broad consent;Statistics
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