IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v66y2008i6p1379-1392.html
   My bibliography  Save this article

Defining the "community" in community consultation for emergency research: Findings from the community VOICES study

Author

Listed:
  • Ragin, Deborah Fish
  • Ricci, Edmund
  • Rhodes, Rosamond
  • Holohan, Jennifer
  • Smirnoff, Margaret
  • Richardson, Lynne D.

Abstract

This article explores the application of the concept "community consultation" in the context of emergency medical research. Emergency medicine researchers are permitted, by the World Medical Association regulations and in the United States by U.S. Federal Regulations, to conduct emergency medical research on individuals with a life-threatening condition without obtaining their consent or that of their surrogates if certain conditions are met. Among these conditions is the requirement that researchers observe a number of special protections for the participants, including "community consultation and notification" prior to the initiation of such studies. The term "community" is not defined clearly and the process for conducting community consultations is not specified in these regulations. This study explores the feasibility of conducting community consultation in the context of emergency medical research by examining: research participant's definitions of community in New York, the factors that help shape their definitions of community and the people they would authorize to render participation decisions on their behalves. Findings from this study suggest that participants' definitions of community vary as a function of the purpose of the definition and the demographics of the respondents. Most significantly, this study reveals that although respondents can identify potential spokespersons for their communities, these community spokespersons were rarely identified as those who should have decision-making authority in medical emergencies. Finally, this article explores the implications of these findings for the definition of community as it applies to community consultation for emergency medical research.

Suggested Citation

  • Ragin, Deborah Fish & Ricci, Edmund & Rhodes, Rosamond & Holohan, Jennifer & Smirnoff, Margaret & Richardson, Lynne D., 2008. "Defining the "community" in community consultation for emergency research: Findings from the community VOICES study," Social Science & Medicine, Elsevier, vol. 66(6), pages 1379-1392, March.
    • Handle: RePEc:eee:socmed:v:66:y:2008:i:6:p:1379-1392
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277-9536(07)00548-5
    Download Restriction: Full text for ScienceDirect subscribers only
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Grady, C. & Hampson, L.A. & Wallen, G.R. & Rivera-Goba, M.V. & Carrington, K.L. & Mittleman, B.B., 2006. "Exploring the ethics of clinical research in an urban community," American Journal of Public Health, American Public Health Association, vol. 96(11), pages 1996-2001.
    2. Jewkes, Rachel & Murcott, Anne, 1996. "Meanings of community," Social Science & Medicine, Elsevier, vol. 43(4), pages 555-563, August.
    3. MacQueen, K.M. & McLellan, E. & Metzger, D.S. & Kegeles, S. & Strauss, R.P. & Scotti, R. & Blanchard, L. & Trotter II, R.T., 2001. "What is community? An evidence-based definition for participatory public health," American Journal of Public Health, American Public Health Association, vol. 91(12), pages 1929-1938.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Soo Yon Yi & Aimee Jeehae Kim, 2023. "Implementation and Strategies of Community Music Activities for Well-Being: A Scoping Review of the Literature," IJERPH, MDPI, vol. 20(3), pages 1-34, January.
    2. Boeing, Philipp & Wang, Yihan, 2021. "Decoding China's Covid-19 "virus exceptionalism": Community-based digital contact tracing in Wuhan," ZEW Discussion Papers 21-028, ZEW - Leibniz Centre for European Economic Research.
    3. Virginia Araceli Feliz & Sue D. Hobbs & Rose Borunda, 2022. "Strengthen and Respect Each Thread," IJERPH, MDPI, vol. 19(21), pages 1-11, October.
    4. Saud Alshehri & Yacine Rezgui & Haijiang Li, 2015. "Delphi-based consensus study into a framework of community resilience to disaster," Natural Hazards: Journal of the International Society for the Prevention and Mitigation of Natural Hazards, Springer;International Society for the Prevention and Mitigation of Natural Hazards, vol. 75(3), pages 2221-2245, February.
    5. C. Marlene Fiol & Edward J. O'Connor, 2002. "When Hot and Cold Collide in Radical Change Processes: Lessons from Community Development," Organization Science, INFORMS, vol. 13(5), pages 532-546, October.
    6. Maris Kalinka & Sanda Geipele & Edgars Pudzis & Andrejs Lazdins & Una Krutova & Jurijs Holms, 2020. "Indicators for the Smart Development of Villages and Neighbourhoods in Baltic Sea Coastal Areas," Sustainability, MDPI, vol. 12(13), pages 1-13, June.
    7. Chad Stephen Boda, 2018. "Community as a Key Word: A Heuristic for Action-Oriented Sustainability Research," Sustainability, MDPI, vol. 10(8), pages 1-19, August.
    8. Ramirez-Marquez, Jose E. & Rocco, Claudio M. & Barker, Kash & Moronta, Jose, 2018. "Quantifying the resilience of community structures in networks," Reliability Engineering and System Safety, Elsevier, vol. 169(C), pages 466-474.
    9. Michelle M. Olivier & Benjamin P. Wilson & Johnathon L. Howard, 2017. "Determining Localisation Metrics," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 131(2), pages 467-487, March.
    10. True, Gala & Alexander, Leslie B. & Fisher, Celia B., 2017. "Supporting the role of community members employed as research staff: Perspectives of community researchers working in addiction research," Social Science & Medicine, Elsevier, vol. 187(C), pages 67-75.
    11. Larissa Petrucci, 2020. "Theorizing postfeminist communities: How gender‐inclusive meetups address gender inequity in high‐tech industries," Gender, Work and Organization, Wiley Blackwell, vol. 27(4), pages 545-564, July.
    12. Smith-Morris, Carolyn, 2017. "Epidemiological placism in public health emergencies: Ebola in two Dallas neighborhoods," Social Science & Medicine, Elsevier, vol. 179(C), pages 106-114.
    13. Gordon, Ross & Gurrieri, Lauren & Chapman, Michael, 2015. "Broadening an understanding of problem gambling: The lifestyle consumption community of sports betting," Journal of Business Research, Elsevier, vol. 68(10), pages 2164-2172.
    14. Almedom, Astier M., 2005. "Social capital and mental health: An interdisciplinary review of primary evidence," Social Science & Medicine, Elsevier, vol. 61(5), pages 943-964, September.
    15. Phyllis Dako-Gyeke & Adolphina Addoley Addo-Lartey & Deda Ogum Alangea & Yandisa Sikweyiya & Esnat Dorothy Chirwa & Dorcas Coker-Appiah & Rachel Jewkes & Richard Mawuena Kofi Adanu, 2019. "'Small small quarrels bring about happiness or love in the relationships’: Exploring community perceptions and gendered norms contributing to male perpetrated intimate partner violence in the Central ," PLOS ONE, Public Library of Science, vol. 14(11), pages 1-22, November.
    16. Samantha Wells & Andrea Flynn & Kathryn Graham & Jürgen Rehm & John Cairney & Nick Kates & James L. Kennedy & Daniela S.S. Lobo & Michael Chaiton & Peter Menzies & Rachel F. Tyndale & Zulfikarali Verj, 2011. "Using a Mobile Laboratory to Study Mental Health, Addictions and Violence: A Research Plan," Challenges, MDPI, vol. 2(1), pages 1-18, January.
    17. Odeya Cohen & Stav Shapira & Limor Aharonson-Daniel & Judith Shamian, 2019. "Confidence in Health-Services Availability during Disasters and Emergency Situations—Does it Matter?—Lessons Learned from an Israeli Population Survey," IJERPH, MDPI, vol. 16(19), pages 1-12, September.
    18. Nicola Banwell & Shannon Rutherford & Brendan Mackey & Cordia Chu, 2018. "Towards Improved Linkage of Disaster Risk Reduction and Climate Change Adaptation in Health: A Review," IJERPH, MDPI, vol. 15(4), pages 1-18, April.
    19. Sumaiya Sadeka & Mohd Suhaimi Mohamad & Md. Sujahangir Kabir Sarkar & Abul Quasem Al-Amin, 2020. "Conceptual Framework and Linkage Between Social Capital and Disaster Preparedness: A Case of Orang Asli Families in Malaysia," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 150(2), pages 479-499, July.
    20. Monica Roman & Vlad I. Roșca & Smaranda Cimpoeru & Elena-Maria Prada & Ioana Manafi, 2023. "“A Picture Is Worth a Thousand Words”: Youth Migration Narratives in a Photovoice," Societies, MDPI, vol. 13(9), pages 1-15, August.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:66:y:2008:i:6:p:1379-1392. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.