IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v61y2005i7p1560-1566.html
   My bibliography  Save this article

Discrepancy in the preferences of place of death between terminally ill cancer patients and their primary family caregivers in Taiwan

Author

Listed:
  • Tang, Siew Tzuh
  • Liu, Tsang-Wu
  • Lai, Mei-Shu
  • McCorkle, Ruth

Abstract

There is a worldwide common preference for dying at home. However, death at home does not come without significant challenges and potential consequences for families. Given the interactive nature of decisions regarding the place of death, the family's perspective is important and needs to be investigated. The purposes of this study were to compare (1) Taiwanese terminally ill cancer patients' and their family caregivers' preferences for the patient's place of death; and (2) important factors that are considered in choosing the preferred place of death from both points of view. A total of 617 dyads of terminally ill cancer patients and their family caregivers were surveyed. The majority of both terminally ill cancer patients and their family caregivers preferred to die at home (61.0% and 56.9%, respectively). A higher proportion of the family caregivers indicated a preference for hospital death for the patients. There was a moderate association between the two respondents in the preferences of place of death. Results underscore discrepancies between patients and their families in the importance given to cultural concerns, quality of health care, worries of being a burden to others, lack of availability of families, relationships with health care providers, and being surrounded by the home environment. Effective interventions need to be developed which can lighten the caregiving burden and help families retain dying patients at home, avoid unnecessary re-hospitalizations and unfavorable hospital deaths, and improve accordance with the patient's wishes.

Suggested Citation

  • Tang, Siew Tzuh & Liu, Tsang-Wu & Lai, Mei-Shu & McCorkle, Ruth, 2005. "Discrepancy in the preferences of place of death between terminally ill cancer patients and their primary family caregivers in Taiwan," Social Science & Medicine, Elsevier, vol. 61(7), pages 1560-1566, October.
    • Handle: RePEc:eee:socmed:v:61:y:2005:i:7:p:1560-1566
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277-9536(05)00082-1
    Download Restriction: Full text for ScienceDirect subscribers only
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Chochinov, Harvey Max & Hack, Thomas & McClement, Susan & Kristjanson, Linda & Harlos, Mike, 2002. "Dignity in the terminally ill: a developing empirical model," Social Science & Medicine, Elsevier, vol. 54(3), pages 433-443, February.
    2. Thomas, C & Morris, S.M & Clark, D, 2004. "Place of death: preferences among cancer patients and their carers," Social Science & Medicine, Elsevier, vol. 58(12), pages 2431-2444, June.
    3. Christakis, Nicholas A. & Iwashyna, Theodore J., 2003. "The health impact of health care on families: a matched cohort study of hospice use by decedents and mortality outcomes in surviving, widowed spouses," Social Science & Medicine, Elsevier, vol. 57(3), pages 465-475, August.
    4. Grande, G. E. & Addington-Hall, J. M. & Todd, C. J., 1998. "Place of death and access to home care services: are certain patient groups at a disadvantage?," Social Science & Medicine, Elsevier, vol. 47(5), pages 565-579, September.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Helen YL Chan & Samantha MC Pang, 2010. "Let me talk – an advance care planning programme for frail nursing home residents," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(21‐22), pages 3073-3084, November.
    2. Cohen, Joachim & Bilsen, Johan & Hooft, Peter & Deboosere, Patrick & Wal, Gerrit van der & Deliens, Luc, 2006. "Dying at home or in an institution: Using death certificates to explore the factors associated with place of death," Health Policy, Elsevier, vol. 78(2-3), pages 319-329, October.
    3. Xuan‐Yi Huang & Jen‐Yu Chang & Fan‐Ko Sun & Wei‐Fen Ma, 2010. "Nursing students’ experiences of their first encounter with death during clinical practice in Taiwan," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(15‐16), pages 2280-2290, August.
    4. Ya-Ting Huang & Ying-Wei Wang & Chou-Wen Chi & Wen-Yu Hu & Rung Lin Jr & Chih-Chung Shiao & Woung-Ru Tang, 2020. "Differences in medical costs for end-of-life patients receiving traditional care and those receiving hospice care: A retrospective study," PLOS ONE, Public Library of Science, vol. 15(2), pages 1-21, February.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Lowton, Karen, 2009. "'A bed in the middle of nowhere': Parents' meanings of place of death for adults with cystic fibrosis," Social Science & Medicine, Elsevier, vol. 69(7), pages 1056-1062, October.
    2. Cohen, Joachim & Bilsen, Johan & Hooft, Peter & Deboosere, Patrick & Wal, Gerrit van der & Deliens, Luc, 2006. "Dying at home or in an institution: Using death certificates to explore the factors associated with place of death," Health Policy, Elsevier, vol. 78(2-3), pages 319-329, October.
    3. Jakobsson, Eva & Bergh, Ingrid & Ohlen, Joakim & Oden, Anders & Gaston-Johansson, Fannie, 2007. "Utilization of health-care services at the end-of-life," Health Policy, Elsevier, vol. 82(3), pages 276-287, August.
    4. Noriko Morioka & Jun Tomio & Toshikazu Seto & Yoshie Yumoto & Yasuko Ogata & Yasuki Kobayashi, 2018. "Association between local-level resources for home care and home deaths: A nationwide spatial analysis in Japan," PLOS ONE, Public Library of Science, vol. 13(8), pages 1-13, August.
    5. Lei Jin & Nicholas Chrisatakis, 2009. "Investigating the mechanism of marital mortality reduction: The transition to widowhood and quality of health care," Demography, Springer;Population Association of America (PAA), vol. 46(3), pages 605-625, August.
    6. Hareth Al-Janabi & Job van Exel & Werner Brouwer & Joanna Coast, 2016. "A Framework for Including Family Health Spillovers in Economic Evaluation," Medical Decision Making, , vol. 36(2), pages 176-186, February.
    7. Fabio Ferretti & Andrea Pozza & Maurilio Pallassini & Lorenzo Righi & Fulvia Marini & Sabrina Adami & Anna Coluccia, 2019. "Gender invariance of dignity in non-terminal elderly patients with chronic diseases: a multicentric study," Quality & Quantity: International Journal of Methodology, Springer, vol. 53(3), pages 1645-1656, May.
    8. Walshe, Catherine & Chew-Graham, Carolyn & Todd, Chris & Caress, Ann, 2008. "What influences referrals within community palliative care services? A qualitative case study," Social Science & Medicine, Elsevier, vol. 67(1), pages 137-146, July.
    9. Espinosa, Javier & Evans, William N., 2008. "Heightened mortality after the death of a spouse: Marriage protection or marriage selection?," Journal of Health Economics, Elsevier, vol. 27(5), pages 1326-1342, September.
    10. Bridget Johnston & Philip Larkin & Michael Connolly & Catriona Barry & Melanie Narayanasamy & Ulrika Östlund & Sonja McIlfatrick, 2015. "Dignity‐conserving care in palliative care settings: An integrative review," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(13-14), pages 1743-1772, July.
    11. Street, Annette F. & Love, Anthony, 2005. "Dimensions of privacy in palliative care: views of health professionals," Social Science & Medicine, Elsevier, vol. 60(8), pages 1795-1804, April.
    12. Marjorie Dobratz, 2004. "A Comparative Study of Variables That Have an Impact on Noncancer End-of-Life Diagnoses," Clinical Nursing Research, , vol. 13(4), pages 309-325, November.
    13. Adrian Jaggi & Christoph Junker & Christoph Minder, 2001. "Beeinflusst die medizinische Versorgungsstruktur den Anteil Todesfälle im Spital?," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 46(6), pages 379-388, November.
    14. Wen, Ming & Cagney, Kathleen A. & Christakis, Nicholas A., 2005. "Effect of specific aspects of community social environment on the mortality of Individuals diagnosed with serious illness," Social Science & Medicine, Elsevier, vol. 61(6), pages 1119-1134, September.
    15. Boutheina Fhoula & Majed Hadid & Adel Elomri & Laoucine Kerbache & Anas Hamad & Mohammed Hamad J. Al Thani & Raed M. Al-Zoubi & Abdulla Al-Ansari & Omar M. Aboumarzouk & Abdelfatteh El Omri, 2022. "Home Cancer Care Research: A Bibliometric and Visualization Analysis (1990–2021)," IJERPH, MDPI, vol. 19(20), pages 1-25, October.
    16. Birgitta Andershed, 2006. "Relatives in end‐of‐life care – part 1: a systematic review of the literature the five last years, January 1999–February 2004," Journal of Clinical Nursing, John Wiley & Sons, vol. 15(9), pages 1158-1169, September.
    17. Hareth Al‐Janabi & Job Van Exel & Werner Brouwer & Caroline Trotter & Linda Glennie & Laurie Hannigan & Joanna Coast, 2016. "Measuring Health Spillovers for Economic Evaluation: A Case Study in Meningitis," Health Economics, John Wiley & Sons, Ltd., vol. 25(12), pages 1529-1544, December.
    18. Md Saiful Islam & Md Sarowar Morshed & Gary J Young & Md Noor-E-Alam, 2019. "Robust policy evaluation from large-scale observational studies," PLOS ONE, Public Library of Science, vol. 14(10), pages 1-19, October.
    19. McPherson, Christine J. & Wilson, Keith G. & Murray, Mary Ann, 2007. "Feeling like a burden: Exploring the perspectives of patients at the end of life," Social Science & Medicine, Elsevier, vol. 64(2), pages 417-427, January.
    20. Guccio, Calogero & Pignataro, Giacomo & Romeo, Domenica & Vidoli, Francesco, 2024. "Is austerity good for efficiency, at least? A counterfactual assessment for the Italian NHS," Socio-Economic Planning Sciences, Elsevier, vol. 92(C).

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:61:y:2005:i:7:p:1560-1566. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.