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Reflections and recommendations on research ethics in developing countries

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  • Benatar, S. R.

Abstract

The debate on the ethics of international clinical research involving collaboration with developing countries has achieved a high profile in recent years. Informed consent and universal standards have been most intensively debated. Exploitation and lack of adequate attention to justice in the distribution of risks/harm and benefits to individuals and communities have to a lesser extent been addressed. The global context in which these debates are taking place, and some of the less obvious implications for research ethics and for health are discussed here to broaden understanding of the complexity of the debate. A wider role is proposed for research ethics committees, one that includes an educational component and some responsibility for audit. It is proposed that new ways of thinking are needed about the role of research ethics in promoting moral progress in the research endeavour and improving global health.

Suggested Citation

  • Benatar, S. R., 2002. "Reflections and recommendations on research ethics in developing countries," Social Science & Medicine, Elsevier, vol. 54(7), pages 1131-1141, April.
    • Handle: RePEc:eee:socmed:v:54:y:2002:i:7:p:1131-1141
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    Cited by:

    1. Valdez-Martinez, Edith & Trumbull, Bernardo & Garduno-Espinosa, Juan & Porter, John David Henley, 2005. "Understanding the structure and practices of research ethics committees through research and audit: a study from Mexico," Health Policy, Elsevier, vol. 74(1), pages 56-68, September.
    2. Catherine Molyneux & Jane Goudge & Steve Russell & Jane Chuma & Tebogo Gumede & Lucy Gilson, 2009. "Conducting health-related social science research in low income settings: ethical dilemmas faced in Kenya and South Africa," Journal of International Development, John Wiley & Sons, Ltd., vol. 21(2), pages 309-326.
    3. Dawson, Liza & Kass, Nancy E., 2005. "Views of US researchers about informed consent in international collaborative research," Social Science & Medicine, Elsevier, vol. 61(6), pages 1211-1222, September.
    4. Burgess, Michael M., 2007. "Proposing modesty for informed consent," Social Science & Medicine, Elsevier, vol. 65(11), pages 2284-2295, December.
    5. Kamat, Vinay R., 2014. "Fast, cheap, and out of control? Speculations and ethical concerns in the conduct of outsourced clinical trials in India," Social Science & Medicine, Elsevier, vol. 104(C), pages 48-55.
    6. Slack, C. & Stobie, M. & Milford, C. & Lindegger, G. & Wassenaar, D. & Strode, A. & IJsselmuiden, C., 2005. "Provision of HIV treatment in HIV preventive vaccine trials: a developing country perspective," Social Science & Medicine, Elsevier, vol. 60(6), pages 1197-1208, March.
    7. Simon, Christian & Mosavel, Maghboeba & van Stade, Debbie, 2007. "Ethical challenges in the design and conduct of locally relevant international health research," Social Science & Medicine, Elsevier, vol. 64(9), pages 1960-1969, May.
    8. Gikonyo, Caroline & Bejon, Philip & Marsh, Vicki & Molyneux, Sassy, 2008. "Taking social relationships seriously: Lessons learned from the informed consent practices of a vaccine trial on the Kenyan Coast," Social Science & Medicine, Elsevier, vol. 67(5), pages 708-720, September.
    9. Grol-Prokopczyk, Hanna, 2013. "Thai and American doctors on medical ethics: Religion, regulation, and moral reasoning across borders," Social Science & Medicine, Elsevier, vol. 76(C), pages 92-100.
    10. Molyneux, Sassy & Geissler, P. Wenzel, 2008. "Ethics and the ethnography of medical research in Africa," Social Science & Medicine, Elsevier, vol. 67(5), pages 685-695, September.
    11. Mwiti, Fredah & Goulding, Christina, 2018. "Strategies for community improvement to tackle poverty and gender issues: An ethnography of community based organizations (‘Chamas’) and women's interventions in the Nairobi slums," European Journal of Operational Research, Elsevier, vol. 268(3), pages 875-886.
    12. Heimer, Carol A., 2013. "‘Wicked’ ethics: Compliance work and the practice of ethics in HIV research," Social Science & Medicine, Elsevier, vol. 98(C), pages 371-378.
    13. Barsdorf, Nicola Wendy & Wassenaar, Douglas Richard, 2005. "Racial differences in public perceptions of voluntariness of medical research participants in South Africa," Social Science & Medicine, Elsevier, vol. 60(5), pages 1087-1098, March.

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