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The impacts of distance to hospital on families with a child with a chronic condition

Author

Listed:
  • Yantzi, Nicole
  • Rosenberg, Mark W.
  • Burke, Sharon O.
  • Harrison, Margaret B.

Abstract

Children with chronic conditions and their families face many similar challenges that can be stressful for the family including, daily caregiving activities, financial difficulties caused by unexpected expenses, and increased use of health services to treat and help manage the condition. Many of these families, in addition to facing daily caregiving responsibilities, must travel substantial distances to access some of the necessary aspects of their child's health care. In this study, the Burke et al. (1994-1996) data of repeatedly hospitalized children and their families are used to explore a geographical dimension of family impact, distance. Outcome measures from the Feetham Family Functioning Survey and the Questionnaire on Resources and Stress are analyzed using exploratory and multivariate analysis. Results show that distance to hospital plays a role in the two areas of family life regarding relationships within the immediate family, and issues surrounding the ability to maintain the child in the family home. The implications of the results for family, health care intervention, and government policies and guidelines are discussed.

Suggested Citation

  • Yantzi, Nicole & Rosenberg, Mark W. & Burke, Sharon O. & Harrison, Margaret B., 2001. "The impacts of distance to hospital on families with a child with a chronic condition," Social Science & Medicine, Elsevier, vol. 52(12), pages 1777-1791, June.
    • Handle: RePEc:eee:socmed:v:52:y:2001:i:12:p:1777-1791
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    Cited by:

    1. Ólöf Kristjánsdóttir & Annica Sjöström-Strand & Gudrún Kristjánsdóttir, 2020. "Living with the Memories—Parents’ Experiences of Their Newborn Child Undergoing Heart Surgery Abroad: A Qualitative Study," IJERPH, MDPI, vol. 17(23), pages 1-16, November.
    2. Adipandang Yudono & Firman Afrianto & Annisa Dira Hariyanto, 2023. "The Evaluation of Geographical Health Facilities Structure in Makassar City, Indonesia," IJERPH, MDPI, vol. 20(6), pages 1-21, March.
    3. Goodall, Stephen & King, Madeleine & Ewing, Jane & Smith, Narelle & Kenny, Patricia, 2012. "Preferences for support services among adolescents and young adults with cancer or a blood disorder: A discrete choice experiment," Health Policy, Elsevier, vol. 107(2), pages 304-311.
    4. Lorenzo Jaime Yu Flores & Ramon Rafael Tonato & Gabrielle Ann dela Paz & Valerie Gilbert Ulep, 2021. "Optimizing health facility location for universal health care: A case study from the Philippines," PLOS ONE, Public Library of Science, vol. 16(9), pages 1-13, September.
    5. Tanja C. Vollmer & Gemma Koppen, 2021. "The Parent–Child Patient Unit (PCPU): Evidence-Based Patient Room Design and Parental Distress in Pediatric Cancer Centers," IJERPH, MDPI, vol. 18(19), pages 1-20, September.

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