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Working from the inside out: Implications of breast cancer activism for biomedical policies and practices

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  • Anglin, Mary K.

Abstract

Much has been written about women with breast cancer: about women's lifestyles and reproductive strategies as possible risk factors for the disease, factors which impede or facilitate women's participation in mammography screening, ways to involve women in treatment decision-making, and women's ability to cope with breast cancer diagnoses. Seldom do these accounts examine breast cancer from the perspective of women with the disease. This essay presents material from an ethnographic study in the United States to explore the ways that women have come forward as informed consumers and activists working to make biomedical practices more responsive to the needs of women with breast cancer. Insofar as breast cancer activists reflect the concerns of a predominantly white, middle class constituency, however, additional questions are raised concerning their constructions of breast cancer and the problematics of treatment.

Suggested Citation

  • Anglin, Mary K., 1997. "Working from the inside out: Implications of breast cancer activism for biomedical policies and practices," Social Science & Medicine, Elsevier, vol. 44(9), pages 1403-1415, May.
    • Handle: RePEc:eee:socmed:v:44:y:1997:i:9:p:1403-1415
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    Cited by:

    1. Claire Edwards & Etaoine Howlett & Madeleine Akrich & Vololona Rabeharisoa, 2012. "Attention deficit hyperactivity disorder in France and Ireland: parents' groups' scientific and political framing of an unsettled condition," CSI Working Papers Series 024, Centre de Sociologie de l'Innovation (CSI), Mines ParisTech.
    2. Epstein, Steven, 2016. "The politics of health mobilization in the United States: The promise and pitfalls of “disease constituencies”," Social Science & Medicine, Elsevier, vol. 165(C), pages 246-254.
    3. Madeleine Akrich & Maire Leane & Celia Roberts & João Arriscado Nunes, 2012. "Practising childbirth activism: a politics of evidence," CSI Working Papers Series 023, Centre de Sociologie de l'Innovation (CSI), Mines ParisTech.
    4. Barg, Frances K. & Grier, Sonya A., 2008. "Enhancing breast cancer communications: A cultural models approach," International Journal of Research in Marketing, Elsevier, vol. 25(4), pages 335-342.
    5. Kaiser, Karen, 2008. "The meaning of the survivor identity for women with breast cancer," Social Science & Medicine, Elsevier, vol. 67(1), pages 79-87, July.
    6. Madeleine Akrich, 2010. "From Communities of Practice to Epistemic Communities: Health Mobilizations on the Internet," Sociological Research Online, , vol. 15(2), pages 116-132, May.

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