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Dissonant loss: The experiences of donor relatives

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  • Sque, Magi
  • Payne, Sheila A.

Abstract

Narrative type interviews were carried out with a purposive sample of 24 relatives of organ donors. Relatives were recruited through 3 Regional transplant co-ordinating centres in England. The study examined in-depth the relatives': emotional reactions to the death and donation, perceptions of the decision-making process, assessment of the problems donation caused for them, as well as the benefits it provided. An understanding of what the experience meant to them was elicited, as was the identification of their needs. The interviews were audiotaped and transcribed. The transcripts were analysed using a grounded theory approach, based on the constant comparative method. Themes emerging from the data were named to form categories. Categories were defined and integrated around the central theme of the research to form an analytical version of the story. Donor relatives' experiences were found to revolve around a process of conflict and resolution. Their experience is explained as a theory of "Dissonant Loss".

Suggested Citation

  • Sque, Magi & Payne, Sheila A., 1996. "Dissonant loss: The experiences of donor relatives," Social Science & Medicine, Elsevier, vol. 43(9), pages 1359-1370, November.
    • Handle: RePEc:eee:socmed:v:43:y:1996:i:9:p:1359-1370
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    Citations

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    Cited by:

    1. Bellali, Thalia & Papadatou, Danai, 2007. "The decision-making process of parents regarding organ donation of their brain dead child: A Greek study," Social Science & Medicine, Elsevier, vol. 64(2), pages 439-450, January.
    2. López, Jorge S. & Martínez, José M. & Soria-Oliver, María & Aramayona, Begoña & García-Sánchez, Rubén & Martín, María J. & Almendros, Carmen, 2018. "Bereaved relatives' decision about deceased organ donation: An integrated psycho-social study conducted in Spain," Social Science & Medicine, Elsevier, vol. 205(C), pages 37-47.
    3. Long, Tracy & Sque, Magi & Addington-Hall, Julia, 2008. "Conflict rationalisation: How family members cope with a diagnosis of brain stem death," Social Science & Medicine, Elsevier, vol. 67(2), pages 253-261, July.

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