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Clinical and public health perspectives and applications of health-related quality of life measurement

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  • Ebrahim, Shah

Abstract

Health-related quality of life (HRQL) measures have been developed from the utilitarian ethical perspective of public health medicine which may be contrasted with individual-centred indicators; these empahsise the unique experience of a patient. The impairment-disability-handicap framework provides a more complete description of disease consequences and health outcomes than a generic HRQL indicator. The assessment of reliability and validity of HRQL indicators is often carried out inappropriately: population repeatability is measured when an indicator will be used to examine changes in individuals; between observer variation may be large compared with variation between populations. Content and construct validity are usually measured but the more important predictive validity is neglected. Effect sizes of HRQL indicators are likely to be inflated by use of between subject estimates of variance but the more appropriate within subject variance is seldom reported. HRQL indicators are of very limited value for many clinical and public health tasks: monitoring health of individuals and populations; evaluating the effects of health and social policy; allocating resources; evaluating the effects of treatment. Alternative methods of assessment derived from the impairment-disability-handicap conceptual framework are preferable.

Suggested Citation

  • Ebrahim, Shah, 1995. "Clinical and public health perspectives and applications of health-related quality of life measurement," Social Science & Medicine, Elsevier, vol. 41(10), pages 1383-1394, November.
    • Handle: RePEc:eee:socmed:v:41:y:1995:i:10:p:1383-1394
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    Citations

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    Cited by:

    1. Xinyi Huang & Xingtong Pei & Weiyan Jian & Mingming Xu, 2023. "Socioeconomic Disparities in Individual-Level Quality-Adjusted Life Years throughout Remaining Lifetimes: A National Representative Longitudinal Survey in China," IJERPH, MDPI, vol. 20(5), pages 1-13, March.
    2. Milad Karimi & John Brazier, 2016. "Health, Health-Related Quality of Life, and Quality of Life: What is the Difference?," PharmacoEconomics, Springer, vol. 34(7), pages 645-649, July.
    3. Anna Rozensztrauch & Robert Śmigiel & Dariusz Patkowski & Sylwester Gerus & Magdalena Kłaniewska & Julia Hannah Quitmann & Michaela Dellenmark-Blom, 2022. "Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal At," IJERPH, MDPI, vol. 19(13), pages 1-14, June.
    4. Schalock, Robert L. & Bonham, Gordon S. & Marchand, Cristine B., 2000. "Consumer based quality of life assessment: a path model of perceived satisfaction," Evaluation and Program Planning, Elsevier, vol. 23(1), pages 77-87, February.
    5. Pickles, Kristen & Lancsar, Emily & Seymour, Janelle & Parkin, David & Donaldson, Cam & Carter, Stacy M., 2019. "Accounts from developers of generic health state utility instruments explain why they produce different QALYs: A qualitative study," Social Science & Medicine, Elsevier, vol. 240(C).
    6. Thomas Grochtdreis & Hans-Helmut König & Anju Devianee Keetharuth & Jürgen Gallinat & Alexander Konnopka & Holger Schulz & Martin Lambert & Anne Karow & Judith Dams, 2023. "Psychometric evaluation of the German version of the Recovering Quality of Life (ReQoL) measures in patients with affective disorders," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 24(4), pages 499-512, June.
    7. Martha Carvalho Pereira Teixeira & Fernando Martins Carvalho & Liliane Lins, 2015. "Health-Related Quality of Life of Former Lead Workers in Brazil," IJERPH, MDPI, vol. 12(11), pages 1-10, November.

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