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The social course of epilepsy: Chronic illness as social experience in interior China

Author

Listed:
  • Kleinman, Arthur
  • Wang, Wen-Zhi
  • Li, Shi-Chuo
  • Cheng, Xue-Ming
  • Dai, Xiu-Ying
  • Li, Kun-Tun
  • Kleinman, Joan

Abstract

Findings are reported from a collaborative research project on the experience of epilepsy and treatment among patients and family members in Shanxi and Ningxia Provinces in China. Family, marriage, financial and moral consequences of the social experience of epilepsy support the conceptualization of chronic illness as possessing a social course. Beyond traditional concern with stigma, application of concepts of delegitimation, sociosomatic processes, coping as resistance, contestation in the evaluation of efficacy and compliance, and the cultural ontology of suffering illustrate other ways that social theory is useful in research on chronic illness and disability.

Suggested Citation

  • Kleinman, Arthur & Wang, Wen-Zhi & Li, Shi-Chuo & Cheng, Xue-Ming & Dai, Xiu-Ying & Li, Kun-Tun & Kleinman, Joan, 1995. "The social course of epilepsy: Chronic illness as social experience in interior China," Social Science & Medicine, Elsevier, vol. 40(10), pages 1319-1330, May.
    • Handle: RePEc:eee:socmed:v:40:y:1995:i:10:p:1319-1330
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    Cited by:

    1. Upali Chakravarti, 2008. "Burden of Caring," Indian Journal of Gender Studies, Centre for Women's Development Studies, vol. 15(2), pages 341-363, May.
    2. Dan Allman, 2013. "The Sociology of Social Inclusion," SAGE Open, , vol. 3(1), pages 21582440124, January.
    3. Hongjie Liu & Yongfang Xu & Yehuan Sun & Levent Dumenci, 2014. "Measuring HIV Stigma at the Family Level: Psychometric Assessment of the Chinese Courtesy Stigma Scales (CCSSs)," PLOS ONE, Public Library of Science, vol. 9(3), pages 1-7, March.
    4. Ryan G Wagner & Fredrick Ibinda & Stephen Tollman & Lars Lindholm & Charles R Newton & Melanie Y Bertram, 2015. "Differing Methods and Definitions Influence DALY estimates: Using Population-Based Data to Calculate the Burden of Convulsive Epilepsy in Rural South Africa," PLOS ONE, Public Library of Science, vol. 10(12), pages 1-12, December.
    5. Abadía-Barrero, César Ernesto & Castro, Arachu, 2006. "Experiences of stigma and access to HAART in children and adolescents living with HIV/AIDS in Brazil," Social Science & Medicine, Elsevier, vol. 62(5), pages 1219-1228, March.
    6. Zhou, Yanqiu Rachel, 2007. ""If you get AIDS... You have to endure it alone": Understanding the social constructions of HIV/AIDS in China," Social Science & Medicine, Elsevier, vol. 65(2), pages 284-295, July.
    7. Rao, Deepa & Angell, Beth & Lam, Chow & Corrigan, Patrick, 2008. "Stigma in the workplace: Employer attitudes about people with HIV in Beijing, Hong Kong, and Chicago," Social Science & Medicine, Elsevier, vol. 67(10), pages 1541-1549, November.
    8. Hinton, Devon E. & Rasmussen, Andrew & Nou, Leakhena & Pollack, Mark H. & Good, Mary-Jo, 2009. "Anger, PTSD, and the nuclear family: A study of Cambodian refugees," Social Science & Medicine, Elsevier, vol. 69(9), pages 1387-1394, November.
    9. Shostak, Sara & Zarhin, Dana & Ottman, Ruth, 2011. "What's at stake? Genetic information from the perspective of people with epilepsy and their family members," Social Science & Medicine, Elsevier, vol. 73(5), pages 645-654, September.

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    Keywords

    epilepsy China disability suffering;

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