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Searching for relief from suffering: A patient-oriented qualitative study on medical assistance in dying for mental illness as the sole underlying medical condition

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  • Bastidas-Bilbao, Hamer
  • Stergiopoulos, Vicky
  • van Kesteren, Mary Rose
  • Stewart, Donna Eileen
  • Cappe, Vivien
  • Gupta, Mona
  • Buchman, Daniel Z.
  • Simpson, Alexander I.F.
  • Castle, David
  • Campbell, Bartholemew Hugh
  • Hawke, Lisa D.

Abstract

Medical assistance in dying (MAiD) was introduced into Canadian legislation in 2016. Mental illness as the sole underlying medical condition (MI-SUMC) is excluded from eligibility; this is expected to change in 2024. Incurability, intolerable suffering, capacity to make healthcare decisions, and suicidality have been publicly debated in connection with mental illness. Few studies have explored the views of persons with mental illness on the introduction and acceptability of MAiD MI-SUMC; this study aimed to fill this gap. Thirty adults, residing in Ontario, Canada, who self-identified as living with mental illness participated. A semi-structured interview including a persona-scenario exercise was designed to discuss participants' views on MAiD MI-SUMC and when it could be acceptable or not. Reflexive thematic analysis was used to inductively analyze data. Codes and themes were developed after extensive familiarization with the dataset. A lived-experience advisory group was engaged throughout the study. We identified six themes: The certainty of suffering; Is there a suffering threshold to be met? The uncertainty of mental illness; My own limits, values, and decisions; MAiD MI-SUMCas acceptable when therapeutic means, and othersupports, have been tried to alleviate long-term suffering; and Between relief and rejection. These themes underline how the participants' lived experience comprised negative impacts caused by long-term mental illness, stigma, and in some cases, socioeconomic factors. The need for therapeutic and non-therapeutic supports was highlighted, along with unresolved tensions about the links between mental illness, capacity, and suicidality. Although not all participants viewed MAiD MI-SUMC as acceptable for mental illness, they autonomously embraced limits, values, and decisions of their own along their search for relief. Identifying individual and contextual elements in each person's experience of illness and suffering is necessary to understand diverse perspectives on MAiD MI-SUMC.

Suggested Citation

  • Bastidas-Bilbao, Hamer & Stergiopoulos, Vicky & van Kesteren, Mary Rose & Stewart, Donna Eileen & Cappe, Vivien & Gupta, Mona & Buchman, Daniel Z. & Simpson, Alexander I.F. & Castle, David & Campbell,, 2023. "Searching for relief from suffering: A patient-oriented qualitative study on medical assistance in dying for mental illness as the sole underlying medical condition," Social Science & Medicine, Elsevier, vol. 331(C).
    • Handle: RePEc:eee:socmed:v:331:y:2023:i:c:s027795362300432x
    DOI: 10.1016/j.socscimed.2023.116075
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    References listed on IDEAS

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    1. Newbigging, Karen & Ridley, Julie, 2018. "Epistemic struggles: The role of advocacy in promoting epistemic justice and rights in mental health," Social Science & Medicine, Elsevier, vol. 219(C), pages 36-44.
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