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Illness experience in a chronic disease--ALS

Author

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  • Cobb, Ann Kuckelman
  • Hamera, Edna

Abstract

The representative case study method was used in a 1-year longitudinal study of two individuals with a chronic, degenerative, terminal neurological disease, ALS (amyotrophic lateral sclerosis, also known as Lou Gehrig's Disease). Participants were interviewed in their homes every 2 months to examine the effects of the illness on relationships with family, friends and the health care system. Changing ideas regarding causation, the use and evaluation of various therapies, use of illness role models, spiritual changes and symptom experience were also explored. Kleinman's concept of explanatory models guides the analysis of the data, although we argue for a greater emphasis on evaluation of therapies within this model.

Suggested Citation

  • Cobb, Ann Kuckelman & Hamera, Edna, 1986. "Illness experience in a chronic disease--ALS," Social Science & Medicine, Elsevier, vol. 23(7), pages 641-650, January.
    • Handle: RePEc:eee:socmed:v:23:y:1986:i:7:p:641-650
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    Cited by:

    1. Hirano, Yuko Mandai & Yamazaki, Yoshihiko & Shimizu, Junichi & Togari, Taisuke & Bryce, Thomas James, 2006. "Ventilator dependence and expressions of need: A study of patients with amyotrophic lateral sclerosis in Japan," Social Science & Medicine, Elsevier, vol. 62(6), pages 1403-1413, March.

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