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Spinning, hurting, still, afraid: Living life spaces with Type I Chiari Malformation

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  • Andrews, Gavin J.

Abstract

Human geography's varied engagement with the brain has involved considerations of the way people know and respond to their environments, and their place-based experiences with emotions, mental illnesses and disorders, intellectual disabilities and particular neurological conditions. This paper argues however that this scholarship could be augmented by, and existing expertise be directed towards, considering physical brain abnormalities and injuries. As a case in point it considers the spatial experience of living with Type 1 Chiari Malformation. Through interviews with four sufferers, the research articulates three domains that they have had to re-negotiate - home space, social space and medical space - emphasizing supportive and challenging aspects of each, as well as meaningful and affective qualities to encounters. The paper concludes with some pointers towards the future study of physical brain abnormalities and injuries and the kinds of knowledge it might create to increase awareness and inform care.

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  • Andrews, Gavin J., 2019. "Spinning, hurting, still, afraid: Living life spaces with Type I Chiari Malformation," Social Science & Medicine, Elsevier, vol. 231(C), pages 13-21.
    • Handle: RePEc:eee:socmed:v:231:y:2019:i:c:p:13-21
    DOI: 10.1016/j.socscimed.2018.01.030
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    References listed on IDEAS

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    Cited by:

    1. Lucherini, Mark, 2020. "Spontaneity and serendipity: Space and time in the lives of people with diabetes," Social Science & Medicine, Elsevier, vol. 245(C).
    2. Meijering, Louise & Lettinga, Ant, 2022. "Hopeful adaptation after acquired brain injury: The case of late referrals in the Netherlands," Social Science & Medicine, Elsevier, vol. 293(C).
    3. Gombay, Nicole & Andrews, Gavin J., 2021. "Living with embodied vibrations: Sensory experiences following a traumatic brain injury," Social Science & Medicine, Elsevier, vol. 284(C).

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