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Heuristic decision-making about research participation in children with cystic fibrosis

Author

Listed:
  • Christofides, Emily
  • Dobson, Jennifer A.
  • Solomon, Melinda
  • Waters, Valerie
  • O’Doherty, Kieran C.

Abstract

Traditional perspectives on informed consent assume that when faced with decisions about whether to participate in research, individuals behave according to principles of classical rationality, taking into account all available information to weigh risks and benefits to come to a decision that is optimal for them. However, theoretical and empirical research in psychology suggests that people may not make decisions in this way. Less is known about decision-making processes as they pertain to participating in biomedical research, particularly when the participants are children.

Suggested Citation

  • Christofides, Emily & Dobson, Jennifer A. & Solomon, Melinda & Waters, Valerie & O’Doherty, Kieran C., 2016. "Heuristic decision-making about research participation in children with cystic fibrosis," Social Science & Medicine, Elsevier, vol. 162(C), pages 32-40.
    • Handle: RePEc:eee:socmed:v:162:y:2016:i:c:p:32-40
    DOI: 10.1016/j.socscimed.2016.06.017
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    References listed on IDEAS

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    1. Fontana, Giuseppe & Gerrard, Bill, 2004. "A Post Keynesian theory of decision making under uncertainty," Journal of Economic Psychology, Elsevier, vol. 25(5), pages 619-637, October.
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    3. Todd, Peter M. & Gigerenzer, Gerd, 2003. "Bounding rationality to the world," Journal of Economic Psychology, Elsevier, vol. 24(2), pages 143-165, April.
    4. Lowton, Karen, 2005. "Trials and tribulations: Understanding motivations for clinical research participation amongst adults with cystic fibrosis," Social Science & Medicine, Elsevier, vol. 61(8), pages 1854-1865, October.
    5. Reynolds, William W. & Nelson, Robert M., 2007. "Risk perception and decision processes underlying informed consent to research participation," Social Science & Medicine, Elsevier, vol. 65(10), pages 2105-2115, November.
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