IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v162y2016icp32-40.html
   My bibliography  Save this article

Heuristic decision-making about research participation in children with cystic fibrosis

Author

Listed:
  • Christofides, Emily
  • Dobson, Jennifer A.
  • Solomon, Melinda
  • Waters, Valerie
  • O’Doherty, Kieran C.

Abstract

Traditional perspectives on informed consent assume that when faced with decisions about whether to participate in research, individuals behave according to principles of classical rationality, taking into account all available information to weigh risks and benefits to come to a decision that is optimal for them. However, theoretical and empirical research in psychology suggests that people may not make decisions in this way. Less is known about decision-making processes as they pertain to participating in biomedical research, particularly when the participants are children.

Suggested Citation

  • Christofides, Emily & Dobson, Jennifer A. & Solomon, Melinda & Waters, Valerie & O’Doherty, Kieran C., 2016. "Heuristic decision-making about research participation in children with cystic fibrosis," Social Science & Medicine, Elsevier, vol. 162(C), pages 32-40.
    • Handle: RePEc:eee:socmed:v:162:y:2016:i:c:p:32-40
    DOI: 10.1016/j.socscimed.2016.06.017
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953616302982
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.socscimed.2016.06.017?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Camerer, Colin & Weber, Martin, 1992. "Recent Developments in Modeling Preferences: Uncertainty and Ambiguity," Journal of Risk and Uncertainty, Springer, vol. 5(4), pages 325-370, October.
    2. Lowton, Karen, 2005. "Trials and tribulations: Understanding motivations for clinical research participation amongst adults with cystic fibrosis," Social Science & Medicine, Elsevier, vol. 61(8), pages 1854-1865, October.
    3. Fontana, Giuseppe & Gerrard, Bill, 2004. "A Post Keynesian theory of decision making under uncertainty," Journal of Economic Psychology, Elsevier, vol. 25(5), pages 619-637, October.
    4. Todd, Peter M. & Gigerenzer, Gerd, 2003. "Bounding rationality to the world," Journal of Economic Psychology, Elsevier, vol. 24(2), pages 143-165, April.
    5. Reynolds, William W. & Nelson, Robert M., 2007. "Risk perception and decision processes underlying informed consent to research participation," Social Science & Medicine, Elsevier, vol. 65(10), pages 2105-2115, November.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Alberto Feduzi, 2010. "On Keynes's conception of the Weight of Evidence," Post-Print hal-00870185, HAL.
    2. Feduzi, Alberto, 2010. "On Keynes's conception of the weight of evidence," Journal of Economic Behavior & Organization, Elsevier, vol. 76(2), pages 338-351, November.
    3. Anne Corcos & François Pannequin & Sacha Bourgeois-Gironde, 2012. "Aversions to Trust," Recherches économiques de Louvain, De Boeck Université, vol. 78(3), pages 115-134.
    4. Duersch, Peter & Römer, Daniel & Roth, Benjamin, 2013. "Intertemporal stability of ambiguity preferences," Working Papers 0548, University of Heidelberg, Department of Economics.
    5. W. Kip Viscusi & Scott DeAngelis, 2018. "Decision irrationalities involving deadly risks," Journal of Risk and Uncertainty, Springer, vol. 57(3), pages 225-252, December.
    6. Sergeeva, Anastasia & Bhardwaj, Akhil & Dimov, Dimo, 2021. "In the heat of the game: Analogical abduction in a pragmatist account of entrepreneurial reasoning," Journal of Business Venturing, Elsevier, vol. 36(6).
    7. Claudio A. Bonilla & Pablo A. Gutiérrez Cubillos, 2021. "The effects of ambiguity on entrepreneurship," Journal of Economics & Management Strategy, Wiley Blackwell, vol. 30(1), pages 63-80, February.
    8. Dominiak, Adam & Duersch, Peter & Lefort, Jean-Philippe, 2012. "A dynamic Ellsberg urn experiment," Games and Economic Behavior, Elsevier, vol. 75(2), pages 625-638.
    9. Annika Styczynski & Jedamiah Wolf & Somdatta Tah & Arnab Bose, 2014. "When decision-making processes fail: an argument for robust climate adaptation planning in the face of uncertainty," Environment Systems and Decisions, Springer, vol. 34(4), pages 478-491, December.
    10. Gérard Mondello, 2020. "Building Belief Systems and Medical Ethics: The Covid-19 Controversies," GREDEG Working Papers 2020-35, Groupe de REcherche en Droit, Economie, Gestion (GREDEG CNRS), Université Côte d'Azur, France.
    11. Nagisa Shiiba & Hide-Fumi Yokoo & Voravee Saengavut & Siraprapa Bumrungkit, 2023. "Ambiguity Aversion And Individual Adaptation To Climate Change: Evidence From A Farmer Survey In Northeastern Thailand," Climate Change Economics (CCE), World Scientific Publishing Co. Pte. Ltd., vol. 14(01), pages 1-29, February.
    12. Constantinos Antoniou & Emilios C. Galariotis & Daniel Read, 2014. "Ambiguity Aversion, Company Size and the Pricing of Earnings Forecasts," European Financial Management, European Financial Management Association, vol. 20(3), pages 633-651, June.
    13. Yoram Halevy & Vincent Feltkamp, 2005. "A Bayesian Approach to Uncertainty Aversion," The Review of Economic Studies, Review of Economic Studies Ltd, vol. 72(2), pages 449-466.
    14. Mercè Roca & Robin Hogarth & A. Maule, 2006. "Ambiguity seeking as a result of the status quo bias," Journal of Risk and Uncertainty, Springer, vol. 32(3), pages 175-194, May.
    15. Pamela Giustinelli & Charles F. Manski, 2018. "Survey Measures Of Family Decision Processes For Econometric Analysis Of Schooling Decisions," Economic Inquiry, Western Economic Association International, vol. 56(1), pages 81-99, January.
    16. Maillet, Bertrand & Tokpavi, Sessi & Vaucher, Benoit, 2015. "Global minimum variance portfolio optimisation under some model risk: A robust regression-based approach," European Journal of Operational Research, Elsevier, vol. 244(1), pages 289-299.
    17. Carvalho, M., 2012. "Static vs Dynamic Auctions with Ambiguity Averse Bidders," Other publications TiSEM 1f078e67-88ec-46e3-ae18-1, Tilburg University, School of Economics and Management.
    18. Simon Dietz, 2011. "The treatment of risk and uncertainty in the US Social Cost of Carbon for Regulatory Impact Analysis," GRI Working Papers 54, Grantham Research Institute on Climate Change and the Environment.
    19. Lemoine, Derek M. & Traeger, Christian P., 2010. "Tipping Points and Ambiguity in the Economics of Climate Change," CUDARE Working Papers 98127, University of California, Berkeley, Department of Agricultural and Resource Economics.
    20. Riddel, Mary C. & Shaw, W. Douglass, 2006. "A Theoretically-Consistent Empirical Non-Expected Utility Model of Ambiguity: Nuclear Waste Mortality Risk and Yucca Mountain," Pre-Prints 23964, Texas A&M University, Department of Agricultural Economics.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:162:y:2016:i:c:p:32-40. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.