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Lethal privacy: Quantifying life years lost if the right to informational self-determination guides genetic screening for Lynch syndrome

Author

Listed:
  • Gansen, Fabia
  • Severin, Franziska
  • Schleidgen, Sebastian
  • Marckmann, Georg
  • Rogowski, Wolf

Abstract

Genetic relatives of hereditary colorectal cancer patients with Lynch syndrome (LS) are at risk of cancer. Testing both colorectal cancer patients and relatives of mutation carriers for LS allows targeted prevention. However, this could mean disclosing sensitive health data to family members. In light of potential trade-offs between cost-effectiveness and patient privacy, this study investigates the implications of increasing test uptake in Germany.

Suggested Citation

  • Gansen, Fabia & Severin, Franziska & Schleidgen, Sebastian & Marckmann, Georg & Rogowski, Wolf, 2019. "Lethal privacy: Quantifying life years lost if the right to informational self-determination guides genetic screening for Lynch syndrome," Health Policy, Elsevier, vol. 123(10), pages 1004-1010.
    • Handle: RePEc:eee:hepoli:v:123:y:2019:i:10:p:1004-1010
    DOI: 10.1016/j.healthpol.2019.08.015
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